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Posts Tagged ‘PhD’

Creating a Dementia Friendly Kansas City

Luck. Kismet. The stars aligning. Those are all valid descriptions of our April 5th event, Creating a Dementia Kansas City.

First, we were lucky to have two great speakers: Emily Kearns, PhD, formerly of Dementia Friendly Massachusetts and Michelle Niedens, from the University of Kansas Alzheimer’s Disease Center.

Then, a lovely splash of kismet  when Emily and April Roy, Director of the Plaza Library, were invited to join Gina Kaufmann on KCUR’s Central Standard.

Thanks to Central Standard and lots of grass roots marketing, almost 100 people attended from many different sectors. Our attendees included representatives from The Alzheimer’s Association, The Nelson-Atkins Museum of Art, The Kansas City Symphony, The Renaissance Festival, KC Actors Theatre, The Naka-Kon Anime Convention, the Mayor’s office of Culture and Creative Services, as well as the medical and healthcare communities, senior services providers, the library community, first responders, faith communities, social work consortiums, people who are living with dementia and their friends and care partners, community volunteers, and more.

Our vision was beautifully articulated by our two speakers: “We envision Kansas City as a community where every citizen feels welcomed, valued, and engaged.”

We’ve only just begun and we welcome your support. 

 

 

Click on this link to enjoy a brief sampling of our Dementia Friendly Kansas City official launch

Click here to preview some inspiring action steps

Click to view informative and inspiring short videos on our YouTube channel

Please consider joining us for our follow through Lunch and Learns.

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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Creating a Dementia Friendly Kansas City: Join us and make a difference.

 

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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Pick the Best Care Community for Your Loved One

My hands were sweating as Mom, Dad, and I entered the memory care unit. We desperately wanted to pick the best care community for my mother. Pam, the head nurse, rushed towards us, arms outstretched. 

“So good to see you again,” she told my father and me. She turned to Mom. “And you must be Frances. Paul has told me so much about you. I hear you’re a nurse too.”

She took Mom’s arm and they walked together down the corridor, talking. We followed and Pam stopped at a small dining area, where coffee and cookies, chocolate chip, one of Mom’s favorites, awaited us. Dad and I looked at each other and smiled. Maybe, just maybe, this was going to be all right. 

We had already visited several homes and none of them seemed warm enough, caring enough, or quiet enough for Mom. What had won us over was Pam and her feeling for people who were living with memory loss, her determination to create community, her compassionate and easy way of communicating. 

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One of the most challenging experiences caregivers can face is finding the right community when your loved one needs care. Jytte Lokvig, PhD, regularly consults with families on this issue. Her new book, Moving & More, offers families concrete guidelines for finding the facility that meets their needs.

Click here to see our interview with Jytte Lokvig

When visiting a care community, Jytte suggests that we ignore the lobby and the landscaping. A beautiful lobby soothes the family’s soul but has little to do with the quality of care and engagement offered. Spend at least a couple of hours in memory care.

“Remember,” she says, “you are asking your loved one to live here. Stay on after your tour and blend into the scenery, so you can really get a sense of how staff and residents interact.”

Here’s what you want to learn:

  • Does the facility practice “Person centered-care?
  • Do residents participate in menu and activity choices?
  • What is the staff/resident ratio?
  • What are the staff retention rates?
  • Do all staff receive mandatory first aid and dementia training?
  • Are the family, nurse, personal care and activity staff involved in creating the resident’s care plans?
  • Does the activities calendar offer a blend of entertainment and interaction? 
  • Are there both individual, small group, and large group activities?
  • Does the staff acknowledge each resident, even with a simple greeting or compliment?

After you have a sense of the community, take your loved one to visit. Have a meal with the residents. Stay for an activity program. 

“Several visits like this helps both of you feel more comfortable when the move comes,” Jytte says.

For more tips and information, visit Jytte’s site at http://www.alzheimersatoz.com and consider her book:  Moving and More.

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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Dementia Friendly Cafes: Inviting Creativity and Connection

       More than 10 years ago, Jytte Lokvig, PhD, was scanning the internet for additional information about dementia. On one of her Google searches she saw the words “Alzheimer’s Cafe” posted by Dr. Bere Miesen, who founded the first Alzheimer’s cafe in Leiden, the Netherlands in 1997. That phrase electrified her.  She leapt out of her chair, much to the dismay of her cat, who was cozily sleeping across her feet, and declared, “I am going to make that happen in the U.S.!” She’d been working with people who were living with dementia in community settings for some years, orchestrating art, music, craft and other meaningful projects. But she felt something was missing. That something, she realized, was engagement in the community.
        From that inspiration, Jytte created the original U.S. Alzheimer’s Cafe in Santa Fe, NM in 2008. Ten years later, there are more than 300 cafes in the US that invite creativity and connection through dementia friendly cafes.   
       Recently, Ron and I visited Jytte’s cafe.
       “The word cafe denotes relaxation, companionship, a place where someone can go in and out without judgement,” Jytte says.
       The Santa Fe Alzheimer’s Cafe is held in an accessible room in the Children’s Museum. Jytte designed her sessions for a small audience and offers a mixture of art projects, singing, jokes, unusual facts, pleasant conversation, and snacks. 
Empowering people to make choices is an important component of Jytte’s cafe: so many people living with dementia don’t have the opportunity to choose. As people arrived, Jytte invited them to choose from an array of healthy snacks. For the art project, she offered a rock or a plate to paint on. 
       “Would you like a round plate of a square one?” she asked.
She had laid down dark green plastic so people could easily see their white plates against the green background. She squeezed bright acrylic paints into palettes and everyone began painting. One guest painted with her care partner, an activity they often do at home. Another guest instantly incorporated a rock,  her palette,  and her paper plate into a fascinating and colorful montage. Her best friend, Susan, delighted us all by bringing her African Grey Parrot, Cochiti, who perched on her head during the session and happily posed for photos and ate dried goldenberries.       
       While we painted, we talked, about art, our lives, the bird, and movies. We all loved movies and Susan told us that one of their Santa Fe theaters offered care partners and people living with dementia two tickets for the price of one. That is an example of one of the fascinating tidbits we learned at the cafe. (We are going to learn more about that program and see which of our wonderful theaters in KC want to offer that discount.)
       “This intimate setting and small group creates a sense of family,” Jytte told us as we hugged everyone goodbye.
She was right. After only two hours, we felt connected to each of the attendees and we were sorry to have to part.  But we were inspired to return home to Kansas City, with fresh ideas for our Cafe.
To set up a cafe atmosphere for an art project in your own home:
  • Arrange a few snacks.
  • Invite a guest or two, if you wish. This is an intergenerational project. 
  • Put a brightly colored plastic covering on the table.
  • Squeeze some acrylic paint into a palette. Or use tempura or water colors.
  • Offer a choice between two brushes.
  • Offer a choice between two canvases: a cardboard paper plate, a river rock, paper, or other.
  • Relax and let the painting unfold.
  • If your loved ones need a little help, you can paint together. Or you can rest their hand on yours, while you paint to get them used to the movement of the brush.
  • Appreciate the art by commenting on the color, the design, the shapes. Don’t ask them to identify the art: enjoy it as it is. 
  • Weave conversation into your time together. 

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For more information about Jytte and her work, visit :
Want to set up your own cafe? Consider Jytte’s book.
Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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