Posts Tagged ‘Lynda Everman’

The Stamp of Fundraising for Dementia: Kudos to Lynda Everman and Kathy Siggins

I am always delighted to get an update from Lynda and Kathy. For years, they promoted the idea of a semi-postal stamp for Alzheimer’s, a stamp that would cost a little more and raise money for the cause. They had to be persistent, dedicated, connective, tireless, creative, and patient. They were.

Their stamp was brought out in November 2017. I was one of the many who were elated. Those are the stamps I buy. I feel joy each time I mail a letter with that semi-postal, knowing that I am raising awareness and money. 

I am sending Lynda’s recent updates. I hope you’ll join me in ordering more stamps right now and in encouraging your representatives to support this stamp, as they can extend the life of the stamp. Lynda and Kathy are an example of how two people, enlisting the support of hundreds of others, can make a dramatic difference. Follow your heart into making your own difference.

Warmly,

Deborah

From Lynda: 

As of the end of February, 6 million Alzheimer’s stamps have been sold to raise $840,000 for NIH funded dementia research: https://about.usps.com/corporate-social-responsibility/semipostals.htm

The sales period for the Alzheimer’s semipostal stamp is time-limited….  The Alzheimer’s stamp which was first issued on November 30, 2017 will be removed from sale on November 30, 2019.

Let’s see what we can do to EXCEED $1 million raised for NIH funded Alzheimer’s research by November 30th! Please keep purchasing and promoting the stamp which is available at most post offices, online at https://store.usps.com/store/product/buy-stamps/alzheimers-S_564204  and by toll-free phone order at 1-800 STAMP-24.

Here’s another update: 

Hello friends,

I am using this tremendous resource from the Alzheimer’s Impact Movement (AIM) to reach out to the health legislative staff of all 535 members of Congress urging all to co-sponsor legislation (H.R. 3113 and S. 1728) requiring the USPS to extend sales of the Alzheimer’s Disease Research Semipostal Stamp for an additional 6 years. 

But I need your help! If you’ve not done so already, would you please call or email your Congressperson and Senators and ask for their support? Below are sample scripts/emails for you to use.

FOR CONGRESSPERSONS:

Request to Co-sponsor H.R. 3113

I want to to call attention to proposed bipartisan, bicameral legislation which, if passed, would extend the sales of the US Postal Service Alzheimer’s Disease Research Semipostal Stamp for an additional 6 years.  

In less than a year and a half on the market, the Alzheimer’s Stamp has raised over $890,000 for NIH funded research for better treatments, prevention and, one day, a cure for these  diseases which have caused too much suffering for far too long. However, despite the fact that 500 million stamps were printed (of which 6.5 million have been sold), without this legislation, all unsold stamps will be removed from sales at the end of November. The passage of this legislation will not increase the Congressional Budget; but it will allow all who use the U.S. mail to continue to voluntarily purchase these stamps to help raise public awareness and funds for critical research.  

Please join your colleagues in co-sponsoring H.R. 3113 “To require the United States Postal Service to sell the Alzheimer’s semipostal stamp for 6 additional years.”

Thank you.

FOR SENATORS:

Request to Co-sponsor S. 1728

I want to to call attention to proposed bipartisan, bicameral legislation which, if passed, would extend the sales of the US Postal Service Alzheimer’s Disease Research Semipostal Stamp for an additional 6 years.  

In less than a year and a half on the market, the Alzheimer’s Stamp has raised over $890,000 for NIH funded research for better treatments, prevention and, one day, a cure for these  diseases which have caused too much suffering for far too long. However, despite the fact that 500 million stamps were printed (of which 6.5 million have been sold), without this legislation, all unsold stamps will be removed from sales at the end of November. The passage of this legislation will not increase the Congressional Budget; but it will allow all who use the U.S. mail to continue to voluntarily purchase these stamps to help raise public awareness and funds for critical research.  

Please join your colleagues in co-sponsoring S. 1728 “A bill to require the United States Postal Service to sell the Alzheimer’s semipostal stamp for 6 additional years.” 

Click to view informative and inspiring short videos on our YouTube channel

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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“Stamp” out Alzheimer’s

Do your part to “Stamp our Alzheimer’s.” For twelve years Lynda Everman was a silent caregiver. Her husband, Richard, was diagnosed with Mild Cognitive Impairment in 1997; in an effort to preserve his dignity, she told few people what they were going through.“We were both introverts and private people,” Lynda says. “My husband and I were a team, taking care of each other, moving through a situation that was too painful to address in public.”
After she had to move her beloved husband into assisted living in 2009, she went on her first advocacy trip to her state capital, Nashville, where she began telling their story. She continues to be an ardent voice for all families impacted by Alzheimer’s and other dementias. Along with activist Kathy Siggins, Lynda campaigns for a semipostal stamp that could raise money for Alzheimer’s Disease research.
The proposed stamp is similar to the Breast Cancer semipostal: consumers pay a little extra for the stamp and the additional funds go to the NIH for medical research. As of May 2017, the US Postal Service has raised over $84.4 million dollars for breast cancer through sales of that stamp. Lynda and Kathy want the same opportunity for Alzheimer’s research.
 Lynda is determined to change the trajectory of Alzheimer’s disease through public policy, increased funding for biomedical research, and recruitment of volunteers for clinical trials. The Alzheimer’s Disease Research Semipostal Stamp is central to Lynda’s campaign for its potential to advance research and public awareness of Alzheimer’s. She has written to every member of Congress urging them to cosponsor the Semipostal and she and Kathy have made countless visits to members.

Here’s where you come in.

H.R. 2973: To provide for the issuance of an Alzheimer’s Disease Research Semipostal Stamp was introduced earlier this year by Reps. Maxine Waters and Chris Smith, Co-chairs of the Bipartisan Congressional Task Force on Alzheimer’s Disease and currently has 76 cosponsors. Lynda and Kathy hope to recruit at least 100 cosponsors so they may request a public Congressional hearing on the merits of the proposed legislation.The stamp  is bipartisan and noncontroversial; it requires no governmental funding or increase in taxes.
You can help RIGHT NOW by calling your congresspersons and asking them to cosponsor H.R. 2973.
“It is important to share your story and speak out for those who cannot,” Lynda says. “ Please help them and their caregivers—and help us make this fundraising stamp a reality.”
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To call the U.S. Capitol Switchboard, dial 202-224-3121 and ask to be put through to the office of your Representative in the House.
If you don’t know the name of your Representative, you can get that information, as well as the direct line to his/her office, by visiting: http://www.contactingthecongress.org.
For more about Lynda’s work, please visit:
In addition to founding ClergyAgainstAlzheimer’s, Lynda served as a editor for “Seasons of Caring: Meditations for Alzheimer’s and Dementia Caregivers” and their recently released Leaders Guide for support groups. http://www.usagainstalzheimers.org/networks/clergy/seasons-caring She has a blog post on UsA2: http://www.usagainstalzheimers.org/blog/its-time-alzheimers-stamp
 Lynda is a tireless advocate on many fronts. On her advocacy site, Help Stamp OUT Alzheimer’s, she shares research and legislative updates, caregiving tips, the work of fellow advocates, and words of encouragement. She is a founding member of three national networks, all under the umbrella of USAgainstAlzheimer’s: ActivistsAgainstAlzheimer’s, ClergyAgainstAlzheimer’s, and WomenAgainstAlzheimer’s; and was instrumental in launching the Faith United Against Alzheimer’s Coalition (FUAAC), a cooperative effort to mobilize all elements of the faith community in the fight against Alzheimer’s disease and related dementias.
Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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