Posts Tagged ‘creativity’

The Power of Play in the Dementia Journey

Josh Rice, a theatre maker and teaching artist,  discovered the power of play in the dementia journey when he was still in graduate school.  As part of a school project, he partnered with a senior living community on a therapeutic puppetry and improv-based program for people living with dementia.

Together, Josh and the seniors designed and made puppets, and created performances that included songs, personal stories, and comedy. As he worked with the new artists, he noticed people were using their puppets to tell stories. They expressed emotions and they enjoyed the chance to play and have fun. Staff applauded the participants’ short-term memory gains and tactile improvements.

“Plus, we were creating exciting work and performing for people,” Josh says.

Puppetry

One afternoon, a woman who was having a difficult day burst into the puppetry classroom. She was non-verbal but acted out aggressively in a way that could have potentially agitated others. As Josh and the students were rehearsing, she walked in and before she could disrupt the class, Josh made eye contact with her, and gently touched her shoulder. He quietly talked to her and invited her to join in or sit and watch. Within minutes she calmed down.

“I put a puppet in her hand and all of a sudden her language came back. It was like a switch had been turned on,” Josh says.  This woman filled him with hope and inspired him. “I want people to understand that people who are living with dementia sometimes need us to be patient and keep giving them chances,” he says.

Being in the Moment

Josh knew the potential power of theatrical play and experimented with improv sessions for people living with dementia. The experiment worked.

“For improv, you have to listen and react,” Josh says.  “The past or future doesn’t matter; it’s all about the present moment.”

He created a safe, nurturing, and creative atmosphere, offering structured improvisations, and invited his new improv team to play.

“They loved it and it was a thrill to watch them discovering new things and coming up with creative dialogues,” Josh says. “Play is an integral part of our lives and most of us need more of it.”

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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 Transferring Skills and Adapting Purpose: Wisdom from Paulan Gordon

As Director of Operations for a national call center, Paulan Gordon’s work required an intense travel schedule, detailed project management skills, and a rigorous adherence to industry standards. So when she started feeling confused, she attributed the struggles to stress. Some days, she felt so overwhelmed that she locked herself in her office and called her husband to come pick her up early.

She was asked to step down from her position. Initially, the loss of her career was both financially and emotionally staggering.  Suddenly, she had no purpose, no income, and no peer group. She had to reinvent her life.

In 2012, at the age of 57, Paulan was diagnosed with vascular dementia. After a period of uncertainty, Paulan began using her interpersonal, communication, and management skills and volunteering as a mentor and a dementia advocate.

“I’ve learned there’s a lot more to life than success in business,” she says.

Building Friendships

When she was working, Paulan was so busy she didn’t have time to build friendships. Now, through her mentoring, she has developed deep connections with others who are living with dementia.

“The relationships you create within the walls of dementia are so intimate,” Paulan says. “People talk very openly about their personal problems and challenges. I feel enriched, being part of these conversations and having such close friends.”

Her work as a dementia mentor has also given Paulan a sense of purpose.

“I work with four people and all of them appreciate my phone calls and my caring. That appreciation boosts my spirits,” she says.

Through her mentoring and advocacy work, she’s met doctors, lawyers, teachers, entrepreneurs, and others who have applied their intelligence and skills to living successfully with dementia.

Speaking out for Adaptation

When Paulan gave business speeches, her hands grew clammy and her mouth dry. She battled nervousness and worried about getting facts wrong and making errors.

“Now, I don’t get very nervous,” she says. “I’m speaking from my heart about things close to me, so I can’t make a mistake. Plus, I’m motivated: I want to help others and I want people to understand the truth about dementia.”

 

Letting Go of Difficulty

“You’ve asked me that question five times already,” Paulan’s husband says.

“Then it must be really important,” she answers.

Paulan is happy she can laugh at trying situations. She has let go of things she can no longer do. She stopped driving because spatial relationships were difficult for her.  Paulan knows she’s forgetful and sometimes repeats herself. Her husband and family take that repetition in their stride.  She’s also trained her family not to interrupt her when she’s talking, because she can easily lose track of what she was saying.

“My husband doesn’t call attention to my deficits and I forget I have them,” she says.

Proactively, he reminds her about meetings and appointments. She uses a big planner and makes detailed notes, including instructions on how to sign onto the internet, and notes on various conversations.

Changing Reading and Money

Paulan is constantly using her creativity to solve problems. She was an avid reader, but her memory retention has diminished and understanding complicated novels with dozens of characters became a challenge.

“If I put down a book, I can’t remember what happened at the beginning,” she says. “Although there is an upside to the situation: I could save money reading the same books over and over again.”

She temporarily put down her tomes and started reading short stories and magazines. This allowed her to continue her beloved hobby without so much frustration.

She also worked around her reduced mathematical abilities. When she shops, she hands the cashier an extra dollar, so she doesn’t get overwhelmed by counting out coins.

“I hope people are honest when they give me change,” she says.

Stirring up her Spirits

“I don’t worry about dying” she says. “I basically feel positive.”

Many people have a distorted view of dementia. With her speaking and writing, Paulan helps people understand the truths of the disease.

“I like sharing ways to support friends and loved ones who are living with dementia,” she says. “This information helps prevent decline and dramatically increases the well being of both care partners and people living with dementia.”

Meanwhile, Paulan’s advocacy and mentoring work has filled her life with depth, friendships, creativity, and purpose.

To learn more from Paulan, order her book:

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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Moving from Depression to Purpose: Wisdom from Dementia Advocate and Mentor Robert Bowles, Jr.

Once again, Robert Bowles, Jr., age 65,  could not sleep. Since he’d been diagnosed with Lewy Body Dementia two years ago, his nights had randomly been plagued with terrifying hallucinations and vivid nightmares that he often acted out. He was exhausted, depressed, and anxious. Plus, he had had to sell his beloved pharmacy and prematurely end a meaningful 40-year career as the community’s trusted pharmacist.

That dismal night, Robert awoke at 1:00 a.m. and dragged himself into his office. He felt a horrible heaviness in his heart

and he cried out to God.

“God,” he said, “Take me home. I don’t want my family to go through this disease.  I can’t endure this any longer.”

As he sank into a chair, he heard a voice, as strong and clear as if someone was sitting right beside him: “Use your five life principles for people who are living with dementia.”

Robert slapped his hand onto his forehead and said to himself, “God is not through with me yet.”

And that realization filled him with hope.

Amending His Purpose: The Five Principles

Love, care, education, encouragement, and hope: these were the principles Robert adhered to with his work, his family, and in his community.

“Understanding that those same tenets could help families affected by dementia was a transformational experience that gave me purpose,” he says.

Robert believes, “People living with dementia need to be encouraged to maintain purpose. While your original purpose may not be possible, you can always modify your vision and continue to live with depth and meaning.”

Throughout his career, Robert was always purpose-driven and outcome-oriented. Along with those qualities, he infuses his current advocacy and mentoring work with compassion. Early on, he realized, “People don’t care what you know; they want to know what you care about.”

Standing up for Personhood

“I made a decision that I would not let dementia define who I was,” Robert says. “ I’m still Robert. I believe in personhood.”

He also believes in learning, overcoming fear, and trying new things. Robert serves on the Georgia Alzheimer’s and Related Dementias (GARD) State Plan Group. He is involved with the Lewy Body Dementia Association (LBDA) and works with the Dementia Action Alliance and the Dementia Spotlight Foundation. He qualified as  a trainer at the Rosalyn Carter Institute and he completed the coursework to became a Certified Eden at Home Associate.  Robert has also been trained in Dementia Beyond Drugs, which teaches ways to decrease behavioral expressions without medications.

Recently, a lady asked him, “How are you able to speak when you have dementia?”

Robert answered, “When I sit there waiting to speak, my mind is all over the place. I wonder, ‘Will I be able to speak, or is the train going to jump the track?’ Then I tell myself, “I am going to have fun.”
He has fun and he speaks from his heart. Audiences connect with him.

Recently, Robert told his neurologist, “I don’t have time to die.” Every year, he typically speaks to more than 100 groups, sharing his story, breaking down stereotypes, educating people on dementia, and inspiring people to live with heart and purpose. ##

Practical  Tips from Robert

Adopt the ASAP philosophy: Acceptance, Socialization, Attitude, and Purpose. Accept your disease and know you are not your disease. Keep and expand your social network. Live with a positive attitude. Be fueled by a purpose.  ASAP was one of the touchstones that delivered Robert from “the Valley of Darkness.”  “Both care partners and people living with dementia benefit from ASAP concepts,” Robert says.

Prepare for your doctor’s visits. As a practicing pharmacist, Robert noticed many people did not prepare for medical visits and therefore didn’t get the information they most needed. He keeps a list of his symptoms. As changes occur, write them down. Before the visit, select your top three issues. Hand this list to the  nurse to give to the doctor. “You save time and get better outcomes,” he says.

For more information about Robert, please visit:

https://lbdlivingbeyonddiagnosis.com/index.html

For more information about living well with dementia, please visit Dementia Action Alliance, https://daanow.org

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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7 Tips for Reducing Caregiver Isolation

Some years ago, when my mom was diagnosed with dementia, I didn’t know anyone else who was going through this journey. I felt very alone, even though I had a beautiful network of friends. I turned to writing to help me make sense of the situation. Eventually, I gathered the courage to share my personal essays with others, often through simply reading my stories aloud to friends and family. Being able to share my thoughts and feelings on this deeply meaningful dementia experience was so therapeutic, and it inspired me to reach out to other caregivers. Through my years as a family caregiver and through interviewing dozens of caregivers and experts in the field of dementia, I gleaned these 7 tips for reducing caregiver isolation.

Listening

When my friend Karen asked me to tell her more about my mom’s life, I was thrilled. I had been so immersed in my caregiving responsibilities, I had forgotten Mom’s fascinating adventures as a nurse in WWII, her worldwide travels, and more. Simply asking questions about the person who is living with dementia and listening avidly to the stories is a gift to the caregiver.

Visiting

“Your mother is so interesting,” my friend Jane said. Jane had offered to simply come to my house and have a short visit with me and Mom.  My mother was going through a period of repetition and I had heard her tale of the natural hot springs in Iceland at least 113 times. But watching Jane lean forward, ask cogent questions, and smile at Mom allowed me to appreciate Mom’s stories in a new way. These were cornerstones in my mother’s life and Jane’s interest reminded me what treasures they were.

Enriching

Mom had been a vibrant movie-goer, an avid opera lover, and an ardent museum enthusiast. But when she could no longer go out, I loved it when people offered to bring arts, culture, and the occasional dog, to us. Studies show that even indirect contact with animals reduces stress. Visits from small dogs and cuddly babies boosted both our spirits and helped us feel connected with our community.

Bringing over an art book and gazing at favorite painters together invited out the creative spirit and were a catalyst for open-ended conversation. Singing and playing music with others stirred up positive memories and filled us with happiness and well-being.

Exercising

So often, caregivers forget the power of fresh air and exercise. They forget the joy of sunshine and trees.  When they don’t have the steam to set out on their own, offering to take them on a stroll, a run, to a yoga class, or just to sit on a bench in a park, can offer moments of connection and renewal.

Noticing 

“What can I do for you?” my life-partner often asked. Frequently, I was so overwhelmed I had no answer. So he asked me concrete questions. “Do you need any errands run?” “Would you like me to make dinner?” “Are there phone calls I can help you make? Grocery shopping I can do?” Offering to do simple tasks helped me understand I did not have to soldier through this alone. Help was all around me and one of my spiritual journeys was learning how to receive it.


Inviting

It’s not always easy to stay connected with friends who are living with dementia and their caregivers, but it is so worth it. Even when my mother felt lost at social gatherings, she still enjoyed the energy of being around empathetic friends. Even when she didn’t understand every speck of conversation, she relished being around others and meeting new people. So did my father and so did I. Having friends reach out with invitations reminded us we were still part of our community.

Asking

Sometimes we don’t know what to say to our friends who are caregivers for those living with dementia. We don’t know what to do. Then it’s time to simply state the truth and tell them, “I want to be there for you, to understand what you’re going through. I want to support you, and I don’t quite know how to do it. Can you guide me?”
Chances are the answer will be a warm hug and a resounding, “Yes.”

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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Inside Dementia: Finding Gifts in the Journey

“My husband and I have been married for 53 years,” a woman with delicately curled silver hair and mournful eyes told the group.  “But in the two years since he was diagnosed with dementia, our relationship has changed.” She dabs at her eyes with a tissue and takes a breath. “It has grown even stronger. We are closer than we’ve ever been.”

Ron and I were in a conference room of caregivers in Ft. Wayne, Indiana, presenting for the Greater Indiana Chapter of the Alzheimer’s Association. We had just shared my story, Love in the Land of Dementia, and we were all talking about the gifts we have found in the dementia journey.

Another woman, whose husband was newly diagnosed, talked about her frustration and impatience before the diagnoses.

“Now that I understand what is going on, I have vowed to be more patient. I don’t want to waste a minute of our time together.”

“My husband doesn’t know who I am right now,” another woman said. “But the other day, he gave me such a compliment. He told me, ‘I want to marry you.’”

She told us how she rummaged in her cedar chest and showed her husband their marriage certificate. He read it with interest. Then he looked at her, eyes shining, and repeated, “I want to marry you.” Those words, so filled with love, lifted her spirits immeasurably. “To think that even now, when he doesn’t remember much of our lives together, he still loves me so much, that means a lot to me.”

She smiled, as we all applauded this amazing love.

We heard more stories of amazing love at our earlier presentation in Merrillville, Indiana. When we talked about the gifts and blessings we had each discovered in the dementia journey, one woman told us, “I find it an honor to take care of my mother. She has done so much for me and I am lucky to get to care for her right now. I am glad to be able to show my unconditional love for her.”

People shared many blessings—patience, the increased ability to live in the present, gratitude, flexibility, humor—but a deepening of love was the overarching message. We felt it during our own caregiving journeys, and we felt it deeply in the presence of those caregivers.

 

“The best and most beautiful things in this world cannot be seen or even heard, but must be felt with the heart.”      Helen Keller 

To learn more about the work the Greater Indiana Chapter of the Alzheimer’s Association is doing, please visit : https://www.alz.org/indiana/

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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Widening the World Through Travel

As the waiter served dessert, Lori La Bey looked around the table at her family and smiled. She couldn’t believe she had pulled this off — her children, her siblings and their children, and her parents all enjoying a Caribbean cruise together.  Her mother was living with Alzheimer’s and her father had brain cancer: they had assumed they wouldn’t get to travel again. They were beaming and Lori knew all her planning had been worth it. She was widening the world through travel.

She still treasures the family pictures from this trip. This meaningful travel experience inspired Lori, founder and host of  Alzheimer’s Speaks, to orchestrate a cruise for people who are living with dementia and their families.

“Travel is a normal part of life,” Lori says. “When you stop traveling, your world becomes smaller.”

From her years caring for her mom, Lori understands how easy it is to feel isolated and stuck. She also understands the joy of engaging in the world, trying new things, and meeting new people. Her trip enriched her family and she wants to offer others that gift of connection and adventure.

Lori also learned some tips from traveling with her parents. Here are a few ideas for creating a smooth traveling experience for yourself and for someone who is living with dementia:

Create a flexible travel experience. Lori chose cruising because it can be reasonably priced, you can unpack once and stay in the same room the entire trip, and there’s lots of flexibility with eating (including free room service), activities, and touring. Cruising is also ideal for the intergenerational experience, offering activities for all ages.

Make the person living with dementia part of planning the trip. Discuss the trip with all involved, asking for feedback and talking about what each person really wants to do. Incorporate those dreams into the trip.

Empower your travelers. Lori packed all her parents things into one giant suitcase. Her father had always been the one managing the luggage and he really wanted something to carry. “I hadn’t thought to pack a couple of small bags so he and my mom could feel like regular travelers,” Lori says. “People want something to be in charge of so they don’t feel left out.”

Work with a travel agent and make your life easier. Plan in advance for noise, long transfers, layovers, long car rides, and other chaos. If flying, call the airport if you need to arrange for wheelchairs or other inner airport transportation. To mute noises, bring earplugs. Carry along items that soothe and comfort each of us, including favorite music and head phones. If you’re cruising, talk to the cruise lines in advance, discussing special needs, including dietary, medical, and any mobility issues.

Take pictures and videos and document these precious moments. You’ll enjoy looking through these memories again and again together.

“Travel is about being together and widening your world,” Lori says.  “It’s a wonderful way to build those moments of magical and meaningful connection.”

For an amazing way to widen your world, consider Lori’s upcoming November Dementia Friendly Conference and Cruise. Lori and a team of educators, including a panel of inspiring people who are living with dementia, have planned a nurturing, connecting, educational, and inspiring Caribbean trip. For more information, visit, https://alzheimersspeaks.com/cruise-with-us

 

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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Enrich Life by Adapting Hobbies 

We all want to be engaged in purposeful and fun activities. When we enrich life by adapting hobbies, we help people living with dementia stay engaged in activities that are meaningful and interesting to them.

Discover What’s Most Important

To adapt hobbies, ask yourself: What is most important about the activity?

For example, for gardeners, is it the feel of their hands in the soil? Is it producing flowers or harvesting vegetables? Is it having something to take care of?

For those who like quilting, is it the finished product or making the squares? Is it the companionship with other quilters? Or the texture and colors of the fabric?

For those who like cooking, is it the measuring and stirring? Do they enjoy the aromas and textures of the ingredients? Is it the joy of preparing something that thrills others? Or is it the simple pleasure of tasting delicious foods?

With those answers, you can support the aspects of the activity that really resonate. You can enrich life by adapting hobbies.

Here is a story about adapting your attitude.

Embrace the New News

That Tuesday morning, she walked into the kitchen and saw her husband, relaxed in his chair, drinking his morning coffee, and reading the newspaper. He loved his morning ritual and everything was as it always had been. Except now he was holding the newspaper upside down. At first, she was upset, angry that dementia had robbed him of reading. As she battled with her feelings, he hummed, a sign he was happy and content. She took a breath and realized, she too should be happy and content.

Go for the Greens

I love this story from Mara Botoni, author of When Caring Takes Courage. Here’s how she kept her grandfather, who was living with dementia,  involved in his golf game. For a time, he walked the golf course and played with empathetic friends. When he could no longer play, he liked being driven around the course, enjoying the scent of freshly mown grass, the vistas of rolling green lawns, and the thwack of a well-hit ball. Later, at home, the family set up an indoor putting green and watched golf tournaments on television with him.

 

 

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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A Better Visit in the Land of Dementia

I’m always amazed at how a change of perspective can widen your heart and open your eyes. This is a story of how my friend helped me look at my mom in a new way and gave me me a better visit in the land of dementia.

Many weekday afternoons I stole away from my workday for a little rendezvous. I drove far into the southern part of the city.

There I hurried through the lobby, walked swiftly down the corridors and until I reached the locked door. There I punched in a secret code that allowed me into the inner sanctum, the memory care unit where my mother lived.

Walking into my mother’s room was always a surprise: I never knew who would greet me; a sweet curly-haired woman wearing a pink sweat suit and looking quietly compose? An anxious haggard woman who bent to pick up invisible lint on the floor and jabbered with invisible creatures lurking in the corners? Or an exhausted former beauty, lying across the single bed wearing an orange pullover and an adult diaper? My task was to appreciate every aspect of my complicated mother and whoever she was at the moment.

When my friend Maril asked, “Can I go with you to visit your mother?” I felt like a flutter of angels had gathered around me.

“Really?” I asked. “You want to see Mom with me?”

She did. I prepared her for our visit, describing Mom’s various moods. Maril did not seem shocked, worried or afraid. I told her about walking into the sometimes chaotic energy of the locked Alzheimer’s unit. She simply nodded as if this were an ordinary occurrence, which, for me, it was.

The day of our visit I felt lightness inside; I was eager to share my secret world with my friend.

Throughout the years, Mom has always been gracious with my friends and that day was no exception. Mom was sitting at a table in the dining room with a magazine in front of her. She looked pretty and serene and she smiled when we came in. We sat next to her and Maril took her hands.

“How are you Fran?” Maril said, looking into my mother’s eyes.

“Well I you know the scatter of it all,” my mother answered.

“I do know the scatter of it all. How are you getting along here?”

“Like a diamond in the sky,” my mother said.

As I listened to my mother and my friend talk, I was  so moved.

“Your mother is really something,” Maril said as we left the home. “I enjoyed seeing her. I’d like to go again with you sometime.” I was proud of my mother’s poetic and eccentric answers, proud of the way she engaged in the conversation. And I was grateful that my friend was able to appreciate my mother, listen to her words and intuit their deeper  meaning.

The visit was a huge gift for me. Seeing Maril engage with and appreciate my mom just as she was reminded me of the depths of my mother’s many talents and facets. This knowledge later helped me get through those moments when my mother seemed faraway or lost. My friend reminded me that there are so many ways to carry on a good conversation. All you need is attention, intention and love.

 

 

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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Connecting Through Reading Together: Wisdom from Anne Vize

Connecting through reading together has always been part of my life, starting with my mother reading me Mother Goose and Grimm’s Fairy Tales. Even when Mom was living with dementia and could no longer track a Shakespearian play or a complicated novel, she loved holding books and she enjoyed hearing lyrical poetry. I was excited when I discovered the work of Anne Vize, Curriculum and education writer, instructional designer, and author of  ‘Reading in the moment – activities and stories to share with adults with dementia’ published by Speechmark.

Anne graciously shared her insights for this blog.

Connecting Through Reading Together: Wisdom from Anne Vize

Why is reading together so important?

Reading is a powerful but sadly often forgotten tool for supporting people who have dementia. Sometimes people worry that they might not read fluently enough, or they might make mistakes when they read, and so avoid doing it all together. But people have been reading together throughout time, and the idea of sharing pose, poetry and stories is an integral part of who we are as people. Just because someone has dementia does not mean they are unable to benefit from the joy of sharing a moment in time, with a great book or piece of text.

How do you get started?

Start small and keep the reading sessions to around 10-15 minutes to begin with. Plan ahead so you know what you are going to read and the sort of ‘voice’ you will use to read it. Some texts are more suited to a bouncy, entertaining voice while others are better suited to a slow, lyrical, smooth reading style. Pick the one that suits the piece you are reading, as well as the one that suits who you are as a reader.

How do you set the scene? 

Sometimes a sensory experience to begin with can be useful, or a brief discussion about the personal experiences of the listener that might relate to the story. You can make a link with seasonal activities such as Easter, Christmas, Passover, Independence Day or Anzac Day, but be aware that these festive or commemorative times might trigger particular memories for some people that might be unintended. Be sensitive and make sure you know a little about the piece you have chosen and the person you are reading to.

What kinds of stories/books do you suggest? 

Read something you are comfortable with. Avoid texts with long, complex sentence structures or multiple characters, as these can be difficult for the person living with dementia to follow. Focus on stories you can read in a single session, with a limited number of characters, and a plot that only moves in a forwards direction (not something that jumps from one period of time to another, as sometimes happens in the short story genre).

How do you use the stories as conversation catalysts? 

You can link what you read with a discussion, activity, or sensory experience, if it seems appropriate. For example, you could read the Australian bush poet Banjo Patterson and then combine this with a sensory experience looking at photos of the Australian bush, exploring plants, and leaves outdoors or listening to the sounds that horses hooves might make on the ground. If you are comfortable wearing a bush hat (called an Akubra in Australia) and a check shirt as you read some bush poetry, all the better!

Books, globe and glasses isolated on white background with a clipping path.

How do you make the experience meaningful and fun? 

Use your judgment and knowledge of the person you are reading to. Think about her needs and personal comfort and monitor how she is faring during your reading session. Think about sensory elements in the room that might interfere with your reading,  such as outside noises, distractions outside the window, people moving in and out with meals or drinks, and the like. These can all take away from your reading experience.

Reading has a tendency to create a feeling of peace, calm and harmony for people and can be a trigger for more conversation and interaction. Even if the person does not recall the reading experience after you have finished, they will retain the mood and feeling that the piece has created for them and this may well last for long after the actual reading experience has ended.

To learn more about Anne, please visit, https://www.facebook.com/pg/Anne-Vize-Writing-Services-126820110730385/posts/?ref=page_internal

Reading in the Moment: Activities and Stories to Share with Adults with Dementia

https://www.amazon.com/Reading-Moment-Activities-Stories-Dementia-ebook/dp/B073RPNFXZ/ref=sr_1_1?s=books&ie=UTF8&qid=1501074110&sr=1-

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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Dementia Journey: Planting Seeds and Growing Engagement

I met so many inspiring people when I was writing Connecting in the Land of Dementia. Activities director Lori Condict, from Chestnut Glen Assisted Living by Americare in St. Peters, Missouri, created an inspiring program focused on planting seeds and growing engagement. Whether you’re a family care partner or you work in a facility, you’ll learn from Lori’s project.

Planting Seeds and Growing Engagement

“Mable, I could use your assistance this morning,” Lori Condict says. “The tomatoes are ripe and I need help picking them. Are you available?”

Mable nods. Lori waits while Mable puts on her gardening hat and gloves. Then they join others from the memory care community outside in the garden.

“What are you thinking about Mable?” Lori asks, handing her a small bucket.

“My first bite of summer tomato.”

“Let’s try one of these,” Lori says.  She knows that Mable and her husband used to have a vast vegetable and flower plot.

Mable plucks a cherry tomato off the vine and pops it into her mouth. Slowly, she picks another and plops it in her bucket. Others in her community are also harvesting the tomatoes.

“We’ll be sharing our vegetables with the food bank, so others less fortunate will enjoy this fresh produce, “Lori reminds her.

“That’s good,” Mable says. “Everyone needs to taste these tomatoes.”

Mable lives in the memory care unit in Chestnut Glen Assisted Living by Americare in St. Peters, Missouri. She is one of the 15 residents working on the Operation Riverfront gardening project.  Lori, the activities director in the care facility, is a city girl. But she knew she’d have plenty of help from her residents. She also knew that they would thrive knowing they had a purpose and were giving back to their community.

Seeding Empowerment

Lori started simply, with a bunch of tomato, cucumber, squash, peppers, and pea seeds, pretty and colorful vegetables that would remind residents of their home gardens. Lori had tasks for all abilities: some held little containers while another filled them with dirt; some tamped in the seeds and others labeled them. Lori provided everyone with special hats and gloves.

While they worked, they reminisced, talking about favorite tomato dishes and summertime activities.

Sharing the Bounty

When it was time to share with the local food pantry, the residents did the harvesting and packing.

“We had planters, pickers, packers, counters, and a watering crew,” Lori says. “People who’d been depressed and disengaged got involved. Through working on the project, they felt alive and useful; they had a purpose.”

Want to grow plants, connections, and a sense of purpose? Here are some tips:

  • Select flowers, plants, vegetables, and herbs that are pretty, colorful, easy to grow, and have some meaning to the person living with dementia.
  • Create small tasks that are interesting and pleasurable.
  • To increase the sense of purpose, find ways to share blooms, cuttings, vegetables, and herbs with family, friends, and community members.
  • For those who can’t go outdoors, bring the plants to them in containers.
  • Infuse the work with opportunities for conversation.

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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