Resources

This is just a sampling of the rich resources available for care partners and people living with dementia. 

Explore:

Books and E Books

CDs, DVDs and Videos

Websites and Blogs

Meaningful Creative Projects

People living with dementia and about advocacy, and community building

Books and E books

August, Yosaif. Coaching for Caregivers, How to Reach Out Before You Burn Out.  Yes to Life Publishing, 2013.

Barbera, Eleanor. Savvy Residents Guide, Everything You Wanted to Know About Your Nursing Home Stay But Were Afraid to Ask. Psychology Insights Press, 2012.

Basting, Anne. Forget Memory: Creating Better Lives for People with Dementia. Johns Hopkins University Press, 2009.

Basting, Anne. Time Slips Creativity Journal. www.timeslips.org/For-Facilitators/creativity-journals.

Bell, Virginia and David Troxel. The Best Friends Book of Alzheimer’s Activities, Volume One and Two. Health Professions Press, 2008.

Bell, Virginia and David Troxel. A Dignified Life, Revised and Expanded: The Best Friends ™ Approach to Alzheimer’s Care: A Guide for Care Partners. Health Professions Press, Inc., 2015.

Borrie, Cathie. The Long Hello. Nightwing Press, 2010.

Botonis, Maria. When Caring takes Courage: A Compassionate, Interactive Guide for Alzheimer’s and Dementia Caregivers. Outskirts Press, 2014.

Brackey, Jolene. Creating Moments of Joy: A Journal for Caregivers. Purdue University Press, 2007.

Brenner, Tom and Karen Brenner, You Say Goodbye and We Say Hello: The Montessori Method for Positive Dementia Care. Brenner Pathways, 2012.

Cail, Mary DcDanile. Alzheimer’s: A Crash Course for Friends and Relatives. True Winds Press, 2013.

Callone, Patricia, et. al. A Caregiver’s Guide to Alzheimer’s Disease: 300 Tips for Making Life Easier. Demos Medical Publishing. 2006.

Camp, Cameron. Montessori –Based Activities for Persons with Dementia. Meyers Research Institute, 2006.

Canfield, Jack et al. Chicken Soup for the Caregiver’s Soul: Stories to Inspire Caregivers in the Home, Community and the World. Health Communications Inc. 2004.

Chalfont, G. and Alex Walker. Dementia Green Care Handbook of Therapeutic Design and Practice.  FREE download from www.chalfontdesign.com. 2013.

Chalfont, G. E. Design for Nature in Dementia Care. Bradford Dementia Group Good Practice Guide. Jessica Kingsley Publishers, 2008.

Craig, Claire, Exploring the Self Through Photography: Activities for Use in Group Work, Philadelphia: Jessica Kingsley Publishers, 2009.

Doherty, Janice Hoetker. A Calendar Year Of Horticultural Therapy. Lilyflower Publishing, Inc., 2009.

Doraiswamy, P. Murali and Lisa Gwyther. The Alzheimer’s Action Plan: What You Need to Know — and What You Can Do — About Memory Problems, from Prevention to Early Intervention and Care. St. Martin’s Press. 2008.

Dowling, JR.  Keeping Busy: A Handbook of Activities for Persons with Dementia. Johns Hopkins University Press, 1995.

Femia, Elia and Karen Love. You Can Help Someone Live Fully with Dementia: A Guide for Family and Friends, FIT Interactive, 2014.

Gawande, Atul, Being Mortal: Medicine and What Matters in the End. Henry Holt and Company, LLC. 2014.

Genova, Lisa. Still Alice.  Simon & Schuster, 2009.

Gilliard, Jane and Mary Marshall.  Fresh Air on my Face: Transforming the Quality of Life for People with Dementia Through Contact with the Natural World. Jessica Kingsley Publishers, 2012.

Glazner, Gary. Dementia ArtsCelebrating Creativity in Elder Care. Health Professions Press, 2014.

Glazner, Gary. Sparking Memories; The Alzheimer’s Poetry Project Anthology, Poem Factory, 2010.

Goyer, Amy. Juggling Life, Work, and Caregiving. AARP, 2015.

Greenblat, Cathy. Alive with Alzheimer’s, University of Chicago Press, 2004.

Greenblat, Cathy, Love, Loss, and Laughter: Seeing Alzheimer’s Differently. Lyons Press Post, 2012.

Griffin, Randy. Bird Tales: A Program For Engaging People With Dementia Through The Natural World Of Birds. HPP, 2013.

Hartley, Carolyn P. and Peter Wong. The Caregiver’s Toolbox. Taylor Trade Publishing, 2015.

Huebner, Berna, Editor. I Remember Better When I Paint: Art and Alzheimer’s: Opening Doors, Making Connections. Bethesday Communications Group, 2011.

Joltin, Adena, Cameron Camp, et. al. A Different Visit: Activities for Care Givers and their Loved Ones with Memory Impairments. Center for Applied Research and Dementia, 2012.

Katz, Rebecca and Mat Edelson.  The Healthy Mind Cookbook: Big-Flavor Recipes to Enhance Brain Function, Mood, Memory, and Mental Clarity.  Ten Speed Press, 2015.

Katz, Rebecca and Mat Edelson. The Longevity KitchenSatisfying Big-Flavor Recipes.Ten Speed Press, 2013.

 Killick, John, and Kate Allen. Communication and the Care of People with Dementia. Open University Press, 2002.

Killick, John, with Claire Craig, Creativity and Communication in Persons With Dementia. Jessica Kingsley Publishers, 2011.

Killick, John. Dementia Positive: A Handbook Based on Lived Experiences. Luath Press, 2014.

Killick, John. Playfulness and Dementia: a Practical Guide. Jessica Kingsley Publishers, 2012.

Killick, John, and Anne Basting, The Arts and Dementia Care: A Resource Guide. National Center for Creative Aging, 2003.

Klammer, Shelley, How to Start An Art Program for the Elderly, e-book www.expressiveartworkshops.com.

Lokvig, Jyette and John Becker. Alzheimer’s A To Z: A Quick-Reference Guide. New Harbinger Publications, 2004.

Lokvig, Jytte Fogh. Alzheimer’s A to Z, Secrets to Successful Caregiving, Endless Circle Press, 2003.

Lokvig, Jytte Fogh. The Alzheimer’s Creativity Project. Endless Circle Press, 2014.

Lokvig, Jytte Fogh. Alzheimer’s and Dementia Relationships and Teamwork Handbook. Endless Circle Press, 2015.

Lowther, Johnna. Through the Eyes of Dementia: A Pocket Guide to Caregiving. Jo Jo Studio Press, 2014.

Lunden, Joan. Chicken Soup for the Soul: Family Caregivers: 101 Stories of Love, Sacrifice, and Bonding. Chicken Soup for the Soul Publishing, 2012.

Mace, Nancy and Peter Rabins. The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Related Dementias, and Memory Loss. Grand Central Publishing, 2012.

Marley, Marie. Come Back Early Today: A Memoir of Love, Alzheimer’s and Joy. Joseph Peterson Books, 2011.

Marley, Marie and Daniel C. Potts, MD. Finding Joy in Alzheimer’s: New Hope For Caregivers. Joseph Peterson Books, 2015.

Marshall, Karrie, A Creative Toolkit for Communication in Dementia Care. Jessica Kingsley Publishers, 2015.

Marshall, Karrie, Puppetry in Dementia Care: Connecting through Creativity and Joy. Jessica Kingsley Publishers, 2013.

McCurry, Susan. When a Family Member Has Dementia: Steps to Becoming a Resilient Caregiver. ABC-CLIO, 2006.

Newmark, Amy and Angela Timash. Chicken Soup for the Soul: Living with Alzheimer’s & Other Dementias: 101 Stories of Caregiving, Coping. Chicken Soup for the Soul Publishing, 2014.

Norris, Katie, and Jennifer Brush. Creative Connections in Dementia Care. Health Professions Press, 2015.

Possel, Rev. Linn and Teepa Snow. A Heart Full of GEMS. Positive Approach, 2015.

Post, Stephen. The Moral Challenge of Alzheimer Disease: Ethical Issues from Diagnosis to Dying. The Johns Hopkins University Press, 2000.

Power, Allen G.  Dementia Beyond Disease: Enhancing Well-Being. Health Professional Press, 2014.

Power, Allen G. Dementia Beyond Drugs: Changing the Culture of Care. Health Professions Press, 2010.

Sabbagh, Marwan, and Beau MacMillan. The Alzheimer’s Prevention Cookbook. Ten Speed Press, 2012.

Schamberger, M. Compassionate Clowning: Improving The Quality Of Life Of People With Dementia, Providing Compassionate Health Care: Challenges in Policy and Practice, edited by Sue Shea, Robin Wynyard and Christos Lionis. Routledge, pp 139 – 154, 2014.

Seley, Tryn Rose. 15 Minutes of Fame: One Photo Does Wonders to Bring You Both Back to Solid GroundeBookIt.com, 2013.

Shouse, Deborah. Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey. Central Recovery Press, 2013.

Stankard, Bernadette and Amy Viets. Dancing in the Dark: How to Take Care of Yourself When Someone You Love Is Depressed. Central Recovery Press, 2012.

Stettinius, Martha. The Dementia Epidemic. Dundee-Lakemont Press2012.

 Taylor, Richard, Alzheimer’s From the Inside Out. Health Professions Press, 2007.

Thomas William H. Life Worth Living: How Someone You Love Can Still Enjoy Life in a Nursing Home. VanderWyk & Burnham, 1996.

Thomas, William H. What Are Old People For? How Elders Will Save the World. VanderWyk & Burnham, 2004.

Wallack, Max and Carolyn Given.  Why Did Grandma Put Her Underwear in the Refrigerator? An Explanation of Alzheimer’s Disease for Children. CreateSpace, 2013.

Zeisel, John.  I’m Still HereA New Philosophy of Alzheimer’s Care. Penguin Group, 2009.

Zgola, Jitka.  Doing Things: A Guide To Programming Activities For Persons With Alzheimer’s Disease and Related Disorders. John’s Hopkins University Press, 1987.

Zoutewelle, Sarah. Chocolate Rain: 100 Ideas For a Creative Approach To Activities In Dementia Care. Hawker Publications, 2015.

CDs, DVDs, and Videos

Carlyle, Carmela. Laughter Yoga with Older Adult. www.carmelacarlyle.com

Elderflowers and Clown Doctors. Hearts & Minds: Behind the Nose. www.vimeo.com/111185931

Greenblat, Cathy. ‪Love, Loss & Laughter – Living with Dementia www.youtube.com/watch?v=bUT3qQFWDvw

Hale, Thomas, director. A Year at Sherbrooke: National Film Board of Canada. Jeff Nachtigall and the origins of Open Studio in longterm care. www.nfb.ca/film/year_at_sherbrooke

 Huebner, Berna and Eric Ellena, co-directors, I Remember Better When I Paint:  Treating Alzheimer’s Through The Creative Arts. DVD. www.irememberbetterwhenipaint.com

 Kataria, Madan, MD. 100 Laughter Yoga Exercise Videoswww.youtube.com/watch?v=Fq4kTZuLops.

Paint Pouringwww.sploid.gizmodo.com/pouring-paint-on-top-of-paint-creates-mind-melting-art-1686208250

Red Nose Coming. Clowning and dementia in care homes; Dementia Services Development Centre 2009. www.dementiashop.co.uk/products/red-nose-coming-dvd-clowning-and-communication-care-homes

Rhythmic Activities for Everyday Care. Institute for Music and Neurologic Function, Featuring Tomaino, Concetta and  Sobol, Marlon,  sponsored by the New York State Department of Health www.imnf.org/

Sobol, Marlon, Shem’s Disciples, Keep On Moving, Audio CD. www.amazon.com/Keep-On-Moving-Marlon-Sobol/dp/B013MQ8HYY

Snow, Teepa.  Filling the Day with Meaning, and other meaningful free videos, www.teepasnow.com/

Websites and Blogs

For information on dementia, care partnering, person-centered care,  communications, resources, research, advocacy, improving lives, and more, visit these sites:

Agewyz. http://agewyz.com

Alzheimer’s Association.  www.alz.org/

Alzheimer’s Disease International. www.alz.co.uk/

Alzheimer’s Foundation of America.  www.alzfdn.org/

Alzheimer’s Reading Room.  www.alzheimersreadingroom.com/

Alzheimer’s Speaks. www.alzheimersspeaks.com/

Changing Aging. www.changingaging.org/

Eden Alternative. www.edenalt.org/

My Better Nursing Home. www.eldercareWithDrEl.com

National Family Caregivers. www.thefamilycaregiver.org

Positive Approach to Care. www.teepasnow.com/

Powered by Inspiration. www.mariashriver.com/

Purple Angel Dementia Awareness Campaign.  www.purpleangel-global.com/

Puzzles to Remember. www.puzzlestoremember.org/

When Caring Takes Courage. whencaringtakescourage.com/

 Us Against Alzheimer’s.  www.usagainstalzheimers.org/

Validation Training Institute. www.vfvalidation.org/

 

Meaningful creative projects

Alzheimer’s cafes.  www.AlzheimersAtoZ.com/

Alzheimer’s Poetry Project.  www.alzpoetry.com/

The Art Of Improvisation.  www.in-themoment.com/

ARTZ (Artists for Alzheimer’s). www.imstillhere.org/artz/

Caregiver’s Voice. www.thecaregiversvoice.com/

Carolyn L. Farrell Foundation. www.farrellfoundation.com./ Bringing art into your life.

Center for Applied Research in Dementia. www.cen4ard.com/ A wealth of information and videos for families.

Chalfont Design. www.chalfontdesign.com/ Gardening ideas.

Conductorcise® – A Sound Workout for Body and Soulwww.conductorcise.com/

Creativity in Care.  www.creativityincare.org/

DementiaJourney.org  www.DementiaJourney.org/ Deborah’s blog on creativity and dementia.

Dementia Positive. www.dementiapositive.co.uk/

Expressive Arts Work Shop.  www.expressiveartworkshops.com/

Hands Project.  www.handsproject.info/

Hearts and Minds. www.heartartsminds.org.uk/

Hilgos Foundation. www.hilgos.org/

I’m Still Here Foundation.  www.imstillhere.org/artz/meet-me-movies/

Inside the Dementia Epidemic.  www.insidedementia.com/

Institute for Music and Neurological Function.  www.musictherapy.imnf.org/

Laughter Yoga.  www.laughteryoga.org/

Love, Loss and Laughter. www.LoveLossAndLaughter.com/

MAC.ART Program Director. www.macart.com.au/ Dr. Julie Gross McAdam and her fascinating murals that she creates with people who are living with dementia.

Meet Me at MoMa.  www.moma.org/meetme/

Music and Memory.  www.musicandmemory.org/

National Center for Creative Aging. www.creativeaging.org/

Open Studio Projects. www.openstudioprojects.com/

Puzzles To Remember.  www.puzzlestoremember.org/

Rhythm Break Cares (RBC) Dance for Dementia programs. www.rbcares.org/

Songwriting Works™.  Judith-Kate Friedman Educational Foundation. www.songwritingworks.org/.

The Society for the Arts in Dementia Care.  www.cecd-society.org/

TimeSlips TM. www.timeslips.org/

 

Voices of people living with dementia, advocacy, and community building

Creating life with words: Inspiration, love and truth. www.Kateswaffer.com/

Dementia Action Alliance. www.daanow.org/

Dementia-Friendly Communities.  www.actonalz.org/dementia-friendly./

Dementia Alliance International. www.dementiaallianceinternational.org/membership/

Scottish Dementia Work Group. www.sdwg.org.uk/useful-links/