The Arts

Movies and Memories: Traveling the World Without Leaving Kansas City:

“I’ve traveled the world. Our family moved a lot when we were young,” one of our guests told us, at our August Movies and Memories program. She and her husband bent over our world map and stuck stars on some of the many places they’d lived. Another guest sighed when he looked at the map and saw Vietnam. He had served in the military there. A couple talked about living in Berlin when the Wall came down. 

Our Movies and Memories travel films included forays into Paris, Iceland, Capetown, and Seoul. 

“It was relaxing just watching the scenes from Paris,” said Ah’Lee Robinson, director of the Kansas City Boys and Girls Choirs. He and his singers treated us to an inspiring concert, warming us up for the films. 

“Oh dear, now I want to go to Iceland,” another guest said. 

In between clips, we passed around exotic spices for everyone to smell. At the end of the movies and memories adventure, everyone took home a special “Passport” booklet, created by the library’s Emily Cox, so they could record impressions and memories.  To experience the event, click here.

Here are some passport questions to discuss at home:

Share some travel memories.

What is one of the most beautiful places you’ve ever visited?

What’s the farthest you’ve ever traveled?

What country has the best food?

How many of the US states have you visited?

Thanks to our wonderful volunteers, Sharon and Julie, who brighten our events by bringing treats, making popcorn, and making everyone feel so at home.

Thanks to Craig Eichelman, State Director, AARP, for helping us spread the word about this program.

We are so grateful for the continuing support from the Kansas City Public Library. They are amazing champions for people who are living with dementia and their care partners. They also provide scholarships for hard-working people whose higher education has been interrupted by life circumstances. Their community programs benefit early readers, job seekers, and people who are new to KC. Ron and I use their books and other services every week!

Please join us for our next adventure — Moana. This movie is so inspiring and great for all ages.

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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Dementia Friendly Cafes: Inviting Creativity and Connection

       More than 10 years ago, Jytte Lokvig, PhD, was scanning the internet for additional information about dementia. On one of her Google searches she saw the words “Alzheimer’s Cafe” posted by Dr. Bere Miesen, who founded the first Alzheimer’s cafe in Leiden, the Netherlands in 1997. That phrase electrified her.  She leapt out of her chair, much to the dismay of her cat, who was cozily sleeping across her feet, and declared, “I am going to make that happen in the U.S.!” She’d been working with people who were living with dementia in community settings for some years, orchestrating art, music, craft and other meaningful projects. But she felt something was missing. That something, she realized, was engagement in the community.
        From that inspiration, Jytte created the original U.S. Alzheimer’s Cafe in Santa Fe, NM in 2008. Ten years later, there are more than 300 cafes in the US that invite creativity and connection through dementia friendly cafes.   
       Recently, Ron and I visited Jytte’s cafe.
       “The word cafe denotes relaxation, companionship, a place where someone can go in and out without judgement,” Jytte says.
       The Santa Fe Alzheimer’s Cafe is held in an accessible room in the Children’s Museum. Jytte designed her sessions for a small audience and offers a mixture of art projects, singing, jokes, unusual facts, pleasant conversation, and snacks. 
Empowering people to make choices is an important component of Jytte’s cafe: so many people living with dementia don’t have the opportunity to choose. As people arrived, Jytte invited them to choose from an array of healthy snacks. For the art project, she offered a rock or a plate to paint on. 
       “Would you like a round plate of a square one?” she asked.
She had laid down dark green plastic so people could easily see their white plates against the green background. She squeezed bright acrylic paints into palettes and everyone began painting. One guest painted with her care partner, an activity they often do at home. Another guest instantly incorporated a rock,  her palette,  and her paper plate into a fascinating and colorful montage. Her best friend, Susan, delighted us all by bringing her African Grey Parrot, Cochiti, who perched on her head during the session and happily posed for photos and ate dried goldenberries.       
       While we painted, we talked, about art, our lives, the bird, and movies. We all loved movies and Susan told us that one of their Santa Fe theaters offered care partners and people living with dementia two tickets for the price of one. That is an example of one of the fascinating tidbits we learned at the cafe. (We are going to learn more about that program and see which of our wonderful theaters in KC want to offer that discount.)
       “This intimate setting and small group creates a sense of family,” Jytte told us as we hugged everyone goodbye.
She was right. After only two hours, we felt connected to each of the attendees and we were sorry to have to part.  But we were inspired to return home to Kansas City, with fresh ideas for our Cafe.
To set up a cafe atmosphere for an art project in your own home:
  • Arrange a few snacks.
  • Invite a guest or two, if you wish. This is an intergenerational project. 
  • Put a brightly colored plastic covering on the table.
  • Squeeze some acrylic paint into a palette. Or use tempura or water colors.
  • Offer a choice between two brushes.
  • Offer a choice between two canvases: a cardboard paper plate, a river rock, paper, or other.
  • Relax and let the painting unfold.
  • If your loved ones need a little help, you can paint together. Or you can rest their hand on yours, while you paint to get them used to the movement of the brush.
  • Appreciate the art by commenting on the color, the design, the shapes. Don’t ask them to identify the art: enjoy it as it is. 
  • Weave conversation into your time together. 

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For more information about Jytte and her work, visit :
Want to set up your own cafe? Consider Jytte’s book.
Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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76 Trombones Star in June’s Movies and Memories Event

In The Music Man, people flock to hear about the idea for a band. They imagine the shiny instruments, the colorful uniforms, and the scruffy boys in their small Iowa town transformed into revered members of a marching band.

In the Movies and Memories showing of this iconic film, life imitated art. During intermission, the Dirty Force Brass Band marched down the aisles of the Truman Forum, playing a zesty jazz number. People from the first floor of the library raced down the stairs, wanting to get closer to the music. Many of them stayed to watch the second half of the movie!

This was the longest movie we’ve shown at our series and it was a big success. What a treat to see it on the big screen and to enjoy a very young and adorable Ronny Howard as Winthrope, the agile and the charismatic Robert Preston wooing the melodic Shirley Jones, as Marian the Librarian. And is there anything better that seeing a movie partially set in a library while you’re sitting in a library.!

You can click on this link to get the flavor of the event:

Movies and Memories: The Music Man

“We loved the music,” one family told us.

“This is my daughter’s favorite musical,” a mom told us, smiling at her four-year-old daughter. 

“All this is free?” one of our guests said, relishing her popcorn and cookie.

Every two months, the Movies and Memories treats the Kansas City community to a dementia and family friend film, along with live music and delicious snacks, and a surprise at the end. Everyone who attended was excited to take home various kinds of colorful noise makers.   #

 

 

 

Please join us for our next dementia-friendly events:

Mark your calendars for these upcoming events:

JULY

Tu 17 – Memory Café: Tea Party

AUGUST

Tu 21 – Memory Café: Nick Haines from KCPT

Su 26 – Movies & Memories: Around the World / KC Boys Choir

SEPTEMBER

Tu 18 – Memory Café: Nelson-Atkins

OCTOBER

Tue 16 – Memory Café: Wornall House

Su 21 – Movies & Memories: Moana, uke players, hula dancers

NOVEMBER

* Wed 14 – Memory Café: Dog & Pony & Pig Show

DECEMBER

Su 9 – Movies & Memories: holiday movie shorts & cookie decorating

Tu 18 – Memory Café: Santa & Symphony

Thanks to all our teammates who help make these gatherings happen: 

The Kanas City Public Library

The Alzheimer’s Association

The Creativity Connection, Deborah Shouse and Ron Zoglin

Kansas City Hospice and Palliative Care

Arts & Aging KC

KC FilmFest

Prairie Elder Care

The Villages of Jackson Creek Memory Care

Dennis and Carol McCurdy, Community Volunteers

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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Creating Low-Cost, Engaging Activities

Creating Low-Cost, Engaging Activities

Alice looks blankly at the magazine as Kimberly Clark turns the pages, pointing to various pictures.  “What do you think of this? Or this?” she asks, pointing to a rose, a table set for tea, a bundt cake. When Kimberly touches a picture of a train, Alice smiles. Although Alice, who is living with dementia, can no longer tell her own stories, Kimberly has heard tales of her adventurous past. When Alice was a restless young woman, she and her new husband occasionally jumped on a freight train and took a ride. This photo will be the centerpiece of the collage they are making. As Program Coordinator at ARC Jackson County, a lifespan respite program in Medford, Oregon, Kimberly is an expert at creating low-cost, engaging activities for people who are living with dementia.

Creating collages is easy, inexpensive, and relaxing. Medical offices will donate their old magazines and she also collects periodicals from friends. If Kimberly knows her client’s family stories, she seeks magazines that have illustrations relevant to them. She lays out a variety of magazines and asks, “Which one do you want to look at first?” They sit together and Kimberly slowly turns pages, listening for comments, watching body language, and facial expressions. When she sees interest or excitement, she may ask, “What are you looking at?” or “What does this remind you of?” She then tears out the picture and sets it aside, so it’s not distracting. Once they have a nice group of photos, they start on the collage, cutting and pasting together.

“The project is empowering and can spark discussion,” Kimberly says. “Plus, we can take our time and we have something artistic and interesting to discuss when it’s done.”

She often uses the finished collage again and again as a conversation starter. 

Kimberly also engages people through simple nature walks, where they notice the colors, shapes, wildlife, and collect vibrantly colored leaves, pinecones, acorns, and more. 

She celebrates people’s individuality by writing their name on watercolor paper in black marker and inviting them to fill in the letters and surroundings with colored pencils. 

When people need a little exercise and a good laugh, she invites her dog to join them in a sparkling game of balloon volleyball. Her dog is an expert at keeping the balloon aloft and soon everyone is supporting him in this uplifting endeavor. 

“Even if you’re not in a good mood, doing some kind of art, exercise, or creative project makes you stop and appreciate the present,” Kimberly says. 

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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KC Memory Cafe Creates The Sounds of Music: A Visit from the Kansas City Symphony

If there’s anything more fun than a one-man band, it’s a one-woman orchestra. On May 15, Margaret Halloin graced the cafe with an astonishing array of instruments. She invoked our inner Itzhak when she introduced us to the versatility of the violin. One moment she used a series of chords to transport us to a hoedown; then she built the tension by creating the sounds of of a chase scene.  We were mellow with the cello and sliding cool with the trombone. We could all feel the beat as she tapped and shook a variety of percussion instruments. And then, she invited all of us to play
Instantly the room transformed from a quietly listening group of adults to a boisterous band of emerging musicians. One couple beat on a drum together. A woman tentatively held the violin. When Margaret helped her coax a sound of out it, she burst into delighted laughter. People tried the cello, the gong, the bongos, and the French horn. Even better than the sounds of music were the spurts of laughter and the lively conversations. After our chaotic impromptu concert, we gathered in small groups to talk about the music in our lives. One man had been a professional pianist. Several people had played in marching bands. Some had never touched an instrument. Until today. 
“Music is one thing that is universal and that brings us all together,” our cafe facilitator, Jennifer Walker, RN, BSN, told us.  
We all applauded. We had gone from a one-woman orchestra to a 50-person orchestra in a matter of an hour and we were feeling energized, happy, and filled with the sounds of music.
Here are some tips for creating your own instrumental experience:
  • Invite several musical kids/friends/relatives to come over, tell you about their instrument, and help you make a sound on it. 
  • Have fun playing imaginary instruments along with a big band or big orchestra music. 
  • Listen to favorite instrumentals and talk about any memories evoked.
  • Look at pictures of various instruments and share stories. Ask open-ended questions with no right or wrong answers, such as, “ What do you think about the piano?” “What are some of your favorite instruments?”
 Many thanks to the Kansas City Symphony for coming to play with us. 
A special thanks to Margaret Halloin and to Stephanie Brimhall, Education Manager. For more information about the Kansas City  Symphony, please visit: http://www.kcsymphony.org
For more information about the KC Memory Cafe, please visit: https://www.facebook.com/kcmemorycafe/

Please join us for our next events: 

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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The Power of Play in the Dementia Journey

Josh Rice, a theatre maker and teaching artist,  discovered the power of play in the dementia journey when he was still in graduate school.  As part of a school project, he partnered with a senior living community on a therapeutic puppetry and improv-based program for people living with dementia.

Together, Josh and the seniors designed and made puppets, and created performances that included songs, personal stories, and comedy. As he worked with the new artists, he noticed people were using their puppets to tell stories. They expressed emotions and they enjoyed the chance to play and have fun. Staff applauded the participants’ short-term memory gains and tactile improvements.

“Plus, we were creating exciting work and performing for people,” Josh says.

Puppetry

One afternoon, a woman who was having a difficult day burst into the puppetry classroom. She was non-verbal but acted out aggressively in a way that could have potentially agitated others. As Josh and the students were rehearsing, she walked in and before she could disrupt the class, Josh made eye contact with her, and gently touched her shoulder. He quietly talked to her and invited her to join in or sit and watch. Within minutes she calmed down.

“I put a puppet in her hand and all of a sudden her language came back. It was like a switch had been turned on,” Josh says.  This woman filled him with hope and inspired him. “I want people to understand that people who are living with dementia sometimes need us to be patient and keep giving them chances,” he says.

Being in the Moment

Josh knew the potential power of theatrical play and experimented with improv sessions for people living with dementia. The experiment worked.

“For improv, you have to listen and react,” Josh says.  “The past or future doesn’t matter; it’s all about the present moment.”

He created a safe, nurturing, and creative atmosphere, offering structured improvisations, and invited his new improv team to play.

“They loved it and it was a thrill to watch them discovering new things and coming up with creative dialogues,” Josh says. “Play is an integral part of our lives and most of us need more of it.”

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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Movies and Memories—An Oscar-Winning Experience

“Thank goodness for this program,” one of our Movie and Memories’ guests told us. “There are so few places Mom and I can enjoy going together these days.”

“Thanks for this cookie. I could really use a little nurturing today,” another said.

“My goodness, I was delighted to learn about this program,” another said.

“What a treat, to have these films and these treats for free,” a couple told us.

Everyone arrived ready for movie magic. One of our volunteers from the Alzheimer’s Association brought a generous tray of cookies and brownies to share with everyone.

“How will we ever eat all those cookies?” I wondered initially. Well, it turns out, we had a large and wonderful group of sweet sweet-lovers, who thoroughly enjoyed the films and the feast.

Our three Oscar-nominated shorts met with great approval and included Glas, Joe’s Violin, and Room on a Broom.  When Michelle Niedens, Director of Education and Programs at the Heart of America Alzheimer’s Association, asked us all, “Which short would you have voted for?” it was between the inspiring documentary of a Holocaust survivor giving his beloved violin to a blossoming music student and the beautifully inclusive and tender animated Room on a Broom.

Save Sunday April 8 at 2:00 for our next Movies and Memories event and join us for this meaningful dementia and family friendly film series. To make sure you know about the series, sign up for the library’s newsletter at http://www.kclibrary.org/newsletter/special-events-signup  We’ll be part of the Kansas City Film Festival—visit Kansas City FilmFest to learn more about their line up. Want to help us spread the word or have an idea for a great movie to show? Just email Deborah at myinfo@pobox.com

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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A Winning Combination: Children, Exercise, and Music

An orderly group of five-year-olds walk into the dining room at Vernon Manor in Viroqua, Wisconsin.  The residents are waiting for them. Each child goes up to an elder and introduces him or her self.  Then Ingrid Constalie, AD-BC, CDP, Board Certified Activity Director and Certified Dementia Practitioner, talks to the assemblage about the importance of staying fit. The residents nod sagely: many of them are in their eighties and nineties and they exercise every day. But the days that the kindergartners join them are the best, a winning combination or children, exercise, and music.

The residents love teaching the kids the alphabetic movements to the iconic YMCA song. And the kids are a burst of giggles and wiggles as they fold their arms into wings, strut around, and teach everyone The Chicken Dance.

Ingrid’s focus is creating moments of joy, engagement, and connection.

Her intergenerational activities spark the residents and reduce the stigmas of aging and dementia by educating and informing local children, teens, their teachers, and other members of the community.

“This dancing and exercise exchange is simple, energizing, and very successful,” Ingrid says.

Sing-O at Bingo

Music Bingo offers middle schoolers a chance to work with Ingrid’s elders.

“This is about creating a good experience for your partners,” Ingrid coaches the children in advance. “You are their connection to the world.”

Ingrid plays an opening melody, using songs such as “Happy Trails,” “You Are My Sunshine,” and “Singing In the Rain.”  Those who know the title shout it out. Often, partners confer with each other. The children help locate the song title on the bingo card and place a poker chip on each answer.  Even people living with advanced dementia enjoy listening to music and being around the children.

Most of the time, the school children are chatty and at ease. But one girl was scared coming into the care community.

“I paired her with Helen, a woman deep into dementia,” Ingrid says. “Within minute, Helen had her arm around the girl and they were both laughing.”

Even children who act up at school are wonderfully behaved during the Bingo experience.

Creating Comparisons and Compassion

Recently, Ingrid orchestrated a project with a high school English class. They interviewed residents and did a comparison and a contrast. For example: “While Clara is getting out of bed with the assistance of staff, I am getting ready for school. While she wheels herself down a long hallway to a dining room, I am eating toast with my sister.”

The teenage journalists asked simple questions, like “What is your morning like?” “How do you spend your afternoon?” “How do you like to dress?”

The students wrote up the results and made booklets. One family was so inspired by the insights in the booklet, they later read parts of it at the woman’s funeral.

Ingrid’s intergenerational connections explore understanding, create empathy, and help create exciting new relationships.

 

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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The Ways the Cookies Crumble

I set my briefcase on my gritty kitchen counter and traced the raised gold lettering on the thick ivory card. “You are Invited to a Holiday Cookie Party,” the note read. The invitation was from a fascinating, creative, high–powered executive I had met several months ago. I was surprised and thrilled that she had invited me to such a gathering.

Each woman would bring a batch of home-baked cookies, she wrote. We would then get to sample all the cookies and bring a bag of treats home to our families. I adored the idea of getting to bring my teenage daughters such an array of home-baked sweets. I envisioned a room filled with charming baskets of star-shaped sugar cookies, generously topped with red or green frosting. I imagined a jolly basket of Santa cookies and a fragrant ginger-scented array of reindeer cookies. I fantasized about thumbprint cookies, shaped like snowflakes and gooey with jam, and about silky buttery sandies melting in my mouth. And…

Then I realized the implication; these holiday cookies would not only need to be beautiful, creative, and delicious, they would need to be presented in festive and unusual ways. I had never really made anything other than the occasional clumpy chocolate chip, peanut butter, or oatmeal cookie. Why hadn’t my mother been a more glamorous baker, I fretted, as I rummaged in the refrigerator for something to make for dinner. She only made the plainest of cookies—date crumbs, peanut butter, and chocolate chip. As I boiled water for pasta and heated up the jar of marinara sauce, a number floated into my head and I dialed it.

“If I go to this party, will you help me with a recipe and a cute idea for presenting the cookies?” I asked my friend Judith, who was graced with five-star baking abilities.

“Of course,” she said. Judith’s aplomb would fit right in at such a gathering. Briefly, I wondered if she could attend in my place and just deliver my treats to me.

I told my daughters the good news—in several weeks we would have our own private holiday cookie festival. Since our sweets were usually made by some giant corporate entity, they were ultra-excited.

A week later, I received a thick packet in the mail. Judith had selected a number of “easy” recipes for me. I smiled as I looked over the pictures of adorable cookies with a cute holiday twist.
I frowned as I read through the baking instructions; each cookie demanded its own specialized pan, gourmet tool, thermometer, or esoteric ingredient.

As the day of the cookie party neared, I had no recipe, no cookies, no plan, and nothing good to wear.

That night at dinner, I said, “I don’t think I can go to the party.”

“Why not?” Sarah said sharply. She was thirteen and took promises and plans very seriously. Plus, she had a highly sophisticated taste for sweets and was looking forward to expanding her repertoire.

“I can’t just walk in carrying a paltry tray of blobby looking chocolate chip cookies.” My throat constricted and I wished I were a mother who could whip up a butterscotch soufflé from ingredients that just happened to be in my kitchen cabinets.

“Why not?” my older daughter Jessica said. Even during the holiday season, she kept to her black-themed wardrobe. She looked Gothic and serious as she said, “Everyone else will be all silver bells and fancy sprinkles. You will represent the good old- fashioned approach to the holidays; your simplicity will be refreshing.”

I took a breath and considered her words. If worse came to worse, I could always pretend I never saw those cookies before in my life.

That evening, my daughters and I made chocolate chip cookies and put them in a tin lined with aluminum foil. In honor of the season, I unearthed a shiny red bow to top the tin.

Walking into the party was like walking into a fairyland. Christmas lights lined the windows and a sparkling tree spread its branches into the living room. The dining room table looked like the December cover of Gourmet magazine. Stars, hearts, Christmas trees, snowmen, all the icons of the season were glowing with icing and sprinkles.
Some cookies were nestled in hand-made wreathes. Others shone from star-shaped or tree shaped boxes. A miniature set of reindeer surrounded a bejeweled fruitcake. A galaxy of colorful star-shaped cookies decorated a tiered silver-server. I admired each display while looking for a quiet corner where I could tuck in my tin of chocolate chips. I finally settled them between candy cane cookies and gingerbread Santas.

My hostess offered me champagne and the conversation flowed. Then she announced, “It’s time to gather the cookies.” She had a large silver gift sack for each of us and encouraged us to take several of each cookie. As I toured the table, I sneaked a look at my humble confection. What if no one took any? What if I had to bring the whole batch home? What if… The doubts daunted me as I filled my sack with delectables.

“Who made the chocolate chip cookies?” someone asked. The room quieted and my breath quickened. As the silence spread, I finally said, “I did.”

“What an interesting idea,” someone said.

“I never would have thought of it. It’s comforting. These cookies remind me of my mother and home.”

I smiled as I put three Santas in my sack and headed for the reindeer.

That evening my daughters and I had a magnificent holiday feast, consisting of cookies, cookies, and cookies.

“Here’s the strange thing, Mom,” Jessica said, as she leaned back, sated. “Your cookies are really just as good as any of them. Not as cute, but just as delicious.”

“More delicious,” Sarah said.

I smiled, thinking that about my mom’s cookies when I was growing up. Maybe there was something about the plain old recipes offered in the plain old way, so sturdy, so unglamorous, and yet so deliciously like coming home.

 

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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Everyday Heroes and Nine Great Things We Learned This Weekend

This weekend we were lucky to be around a lot of heroes—the staff and grantees of The Brookdale Foundation Group, which supports national Relatives as Parents Programs, along with Group Respite programs.  We loved the sense of commitment and community we felt at this event and we also enjoyed learning from other speakers and the attendees. Here are the nine great things we learned from this weekend’s conference.

I.

Explain

Kent Karosen, President and CEO of the Fisher Center for Alzheimer’s Research, spoke about his new children’s book, Why Can’t Grandma Remember My Name?  Written about the way the brain is impacted by dementia and the affects it has on children, the book is illustrated in brilliantly colorful art, created by children, juxtaposed with art by people who are living with dementia. To learn more, www.alzinfo.org

 

 

 

II.

Reframe

Frances Kakugawa, author of I Am Somebody, spoke of the powerful role poetry played in her caregiving role throughout her mom’s dementia journey. While scrubbing the floor after her mother’s bathroom accident, Frances thought, “There must be another poem here.”  She decided to consider herself a poet-caregiver, rather than a struggling-caregiver. Reframing her image and her language helped her transform her attitude. You’ll enjoy visiting www.franceskakugawa.wordpress.com  and learning more about Frances, her writing, and her many books.

 

 

III.

Play

Who knew you could have so much fun with poetry! Gary Glazner, for one, founder of the  Alzheimer’s Poetry Project, who lead the whole group in a rousing call and response version of several popular poems. Gary added in music, movements, and stoked up our enthusiasm and our energy. We also created a poem together. You’ll enjoy using his ideas to deepen your communications and your connections. Visit www.alzpoetry.com and treat yourself to his book, Dementia Arts: Celebrating Creativity in Elder Care.

 

 

IV.

Support

We were shocked and saddened to learn there are more than one million caregiving youth in our country, struggling to stay in school and keep afloat while taking care of ailing family members. Connie Siskowski’s organization, American Association of Caregiving Youth, provides support for these gallant middle schoolers and teens. To learn more about her program, visit www.aacy.org

 

 

 

 

V.

Care

How many of us take enough time to truly care for and nurture ourselves. Jane Barton, speaker, write, and listener, spoke eloquently of compassion fatigue, born of too much caring for others and not enough focus on self. We laughed, cried, and reminded ourselves of the importance of self-care. Learn more from her at www.cardinalife.com and see her book, Caregiving for the GENIUS: Understand the Journey from the Inside Out.

 

 

 

There were more amazing speakers, but we didn’t get to hear them because we were speaking all day Saturday, sharing two information-packed sessions of Connecting in the Land of Dementia and one session of  our beloved The Hero Project. But just because we were teaching doesn’t mean we weren’t learning. Here are just a few of the tips we gathered from our participants.

 

VI.

Give

As a way of adding meaning and purpose to life,  one memory care day group created dog biscuits to donate to their local animal shelter. They stirred up a healthy mixture of organic ingredients, used cookie cutters, and delighted a lot of lonely pooches.

VII.

Collage

Another day care center helped a non-verbal resident create her own collage. One caring person watched carefully as this elder looked through a magazine, pausing at pictures of interest. Then the caregiver tore the photos that had intrigued the woman. Together, they glued them into a collage that the woman enjoys looking at often.

VIII.

Sing

“Song titles inspire singing and conversation,” one participant told us. She shouts out familiar titles and someone in her memory care group usually sings the next couple of verses, with others joining in. This often sparks a conversation about the song.

IX.

Share

The sense of community and generosity during the weekend reminded us again of why we love doing this work and of the importance of sharing things that work, things that don’t, and asking about things we wish we knew. Often, someone else has an answer for us, usually one of those quiet, but powerful, everyday heroes.

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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