Dementia-friendly activities

Art Invites Conversation

Teri Miller, with the Alzheimer’s Association Houston & Southeast Texas Chapter, has witnessed the power of how art invites conversation. As the Early Stage Program Manager, Teri collaborates with a variety of Houston’s arts and civic organizations. 

“Going to cultural activities offers people a sense of normalcy and gives them a date to put on their calendars,” Teri says.  “When they go with friends or care partners, they have an experience to discuss. Even people who say, ‘Oh, I don’t care for museums,’ usually have a great time.”

Sam is an example of someone who was surprised to enjoy the art gallery.

He attended one of Teri’s early stage support groups. His wife, who cared for him at home, went to the care partner’s group. Teri formed a partnership with the Houston Museum of Fine Arts and invited her early stage group to experience a tour. When he heard the invitation, Sam rolled his eyes and said, “I’ve never been to a museum and I’m not about to start now.” 

But the next week, Sam signed up for the tour. 

“What made you change your mind?” Teri asked.

“My wife really wanted to go. She does so much for me, I figured I’d do something for her.”

Teri expected Sam to sit back silently, arms folded over his chest, as the docent asked, “What does this painting make you think of?  Has anyone ever been in a similar setting?”  But to Teri’s surprise, Sam had opinions on each of the three pieces they discussed. 

Sam told Teri, “At first, I didn’t want to go because I was worried I wouldn’t have anything meaningful to contribute.  But I guess you don’t have to know anything about art to enjoy the museum.”

He and his wife talked about the experience all the way home.  Discussing the paintings opened up chances to reminisce and connect. Plus the experience gave them something interesting to share with their grown children and visiting neighbors. 

Like many art partnerships around the country, Teri was inspired by MOMA’s Meet Me art program for people living with dementia. The Houston museum benefitted from MOMA coming to train their docents. The program offers comprehensive guidelines for visiting a museum or viewing art at home.  

Creative Sparks:

Many art galleries and museums offer special tours and events for people living with dementia.  If you’re lucky enough to have such a tour available, take advantage of it. 

To design your own museum tour:

  • Think of a museum your partner likes. If feasible, buy postcards of some of their art or visit their on-line gallery together and ask your partner which pieces he prefers. That way, you can tailor the visit to his taste. 
  • Choose one or two rooms that feature his preferred art. Make sure one room has a place to sit.
  • Use the paintings and sculptures as a catalyst for conversation. Ask open-ended questions, discussing the colors, people, and objects you both notice. 
  • If the museum has a restaurant or tearoom, treat yourselves to something delicious. 
  • Enjoy the sense of connection that comes from discussing art; there are no right or wrong answers, just interesting observations.
  • To fashion a viewing experience at home: 
  • Select art books from the library or use your own personal collection. 
  • Choose works that portray emotion, tell a story or align with your partner’s background or interests.
  • Ask open-ended questions that invite conversation, such as, “What does this make you think of?” and “What do you notice in this picture?” Have fun imagining what the people in the painting are thinking. Imagine their professions and whether they’re happy. 

This is an excerpt from Connecting in the Land of Dementia: Creative Activities to Explore Together. Deborah also wrote Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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Share Your Creative Arts Endeavors: An Opportunity for People who are Living with Dementia

I am honored to be part of the Arts Work Group at the Dementia Action Alliance, which is one of my favorite non-profits. Please share this information with those who might benefit. Warmly, Deborah

Dementia Action AllianceDementia Arts Fest 2019

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Mike Belleville, 2018

The Dementia Arts Fest celebrates art made by persons living with dementia!

Call for Entries
Deadline March 15, 2019

If you are a person living with dementia who engages in creative projects or you’re the leader of a creativity program for people living with dementia, we want to hear from you! You are invited to submit up to 3 pieces of art, ready to display – It’s an easy process to submit. This is what we need:

1. Photos of the artwork in JPEG, PDF, or PNG format. 
Label each image with your last name, the title.

2. A separate page:
Your name (artist’s name) and contact information. 
List of your work with titles, dimensions, and media

3. Write down a brief description about how creating art impacts you and makes you feel. (around 200 words)

5. Email the above information to Karen Love at karenlove4@verizon.net.

Please let us know if you are submitting artwork on behalf of someone else.

Sale of Artwork

▪  Artwork accepted for the exhibition may be for sale, or may be marked as ‘NFS’ (not for sale). If the artwork is NFS, artists must include a prepaid return shipment label for UPS or Federal Express with their artwork shipment.

▪  If the artist’s work is sold, the Dementia Action Alliance [a 501(c)(3) charity] will receive 50% of the retail price set by the artist as a contribution.About the Dementia Action AllianceThe Dementia Action Alliance is a national non-profit organization of people living with dementia, care partners, dementia specialists and others making our nation a better place in which to live with dementia. www.daanow.org

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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KC Memory Cafe: The Goat and Pony Show

One of the stars of November’s KC Memory Cafe was a miniature horse. It’s not every day that a white horse and a couple of black goats visit the Plaza Library, accompanied by exotic bunnies and silky chickens. But these friendly animals, brought to us by the Paramount Petting Zoo, captivated all our attendees.

“These animals love to be held and petted,” their keepers told us. They instantly snuggled into people’s arms and were in no hurry to leave.  Our attendees were filled with a magical sense of connection and relaxation, mixed in with the thrill of meeting all these new animals. 

“Animals fill us with excitement, and give us something to talk about,” says Mandy Shoemaker, co-founder of Prairie Elder Care. Mandy’s organization is part of the esteemed Eden Alternative, a national movement dedicated to reducing loneliness, helplessness, and boredom through loving companionship and meaningful engagement. 

“Animals give us a connection,” she says. 

We could see and feel that connection as we all enjoyed feeding the goats, petting the horse, and cuddling with the bunnies and the chickens. We also shared farm memories and Mandy asked, “How many of you ever thought you’d be holding a chicken in your lap?”

For most, it was a unique experience, one they did not tire of. For some, parting with their loving chicken or bunny was like saying good-bye to a dear friend. 

To meet the animals, click here.

 

 

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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Santa and the Symphony Visit the KC Memory Cafe

 

At our December Memory Cafe, Santa had an amazing pre-show- warm-up band: a trio from the Kansas City Symphony. Their renditions of familiar holiday tunes were musical works of art, filled with melodic flourishes and surprises.  Our guests listened avidly. When Stephanie Brimhall, the Symphony’s Education Manager, led us in a singalong, everyone raised their voices and sang with heart and gusto. As our attendees finished decorating Christmas cookies with colorful icings, bright sprinkles, and little chunks of peppermint, we heard a jingling of bells and a booming, “Ho Ho Ho.” Santa had arrived, with a sack of treats. 

“How many of you have been good?” Santa asked and most of us raised our hands.  Santa made the rounds, passing out sweet treats, courtesy of Russell Stover Chocolates, and wishing everyone a merry holiday. Then he settled into a comfortable chair beside the backdrop of a scenic hearth. We all lined up to sit beside him and have our photos taken with the Great Claus.  Santa warmly welcomed each person and everyone was just thrilled to be near him — and even more thrilled when Jennifer Walker’s remarkable little printer produced a wonderful photographic memento of the event.    

At the end,  Santa summed up the holiday spirit by sharing this message: “Peace for the world and good will for all people.”  

          We hope we can all continue this spirit of hope, sharing, and generosity throughout the new year.

Capture the cafe spirit for yourself by clicking on this short video:

                     

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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Dementia Arts to Draw us Together

September’s Memory Cafe featured a lively team of educators from the Nelson-Atkins Museum of Art. Using the arts to draw us together, they  showed us the Chinese art form of painting pictures of bamboo.  About fifty of us gathered in the the library’s spacious lower level. Colorful plastic cloths covered our tables, making it easy to distinguish our drawing paper and painting supplies. All of us eagerly dipped our special bamboo brushes into the ebony paint and made short pushing movements, replicating segments of the plant’s stalk. Then our educators showed us drawings of bamboo foliage and we experimented with wispy thin lines of leaves.

“I’m glad we’re only using black watercolor,” one of the professional care partners told me. “All of us painting with the same color puts us on common ground.”
Our common ground continued as our teacher said, “Now, we’re going to pass out large sheets of paper.” We all oohed and aahed and let our strokes grow larger and more confident. At the end, each person created a design in a small wedge of clay, pressed the clay into a red stamp pad, and adorned the painting with our own personal “signature.”
Of course, all artists need nourishment and we had wonderful treats courtesy of Kansas City Medicine Partners, Kingswood, Partners in Primary Care, and Morningside Place.
Want to explore using arts to draw you together? Here are some tips fromConnecting in the Land of Dementia, inspired by Berna Huebner, co-director of the documentary, I Remember Better When I Paint.
• Try different types of art in different venues to see what resonates with your partner.

• To add extra meaning, connect the artistic activity with something in your partner’s past.

• Invite an intergenerational mixture of artists, from children, grandchildren, art students, and volunteers to join your partner and add encouragement. 

• Create a variety of art-related activities, including visiting galleries or looking at pictures from magazines, as well as painting, drawing or various media. 

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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Czech Mates in Dementia Care: Laughter Yoga in Prague

The table was spread with an array of Czech delicacies: apple strudel, special sandwiches with flowers of ham atop fresh baguettes, a bountiful tray of strawberries, grapes, and apple slices. 

“This is the way we welcome people here in Prague,” said Lucie Hajkova, social worker and coordinator of respite care for the Czech Alzheimer’s Society.

Ron and I were visiting the Gerontological Centre and the Czech Alzheimer’s Society, which are both housed in the same building. The two organizations work together to offer clients everything they need, from psychological counseling, to memory testing, to social work services, to healthcare. We came to learn and to present a laughter yoga session.

We gathered with staff members around the table to learn about the center, which was started in 1997 by Iva Holmerova, MD. along with Hana Janeckova, PhD. Hana was putting together training materials for caregivers when she was contacted by Alzheimer’s Disease International. They wanted to know more about her work and they invited her to an international conference in Jerusalem. That conference was a turning point. Hana left it inspired and determined to help Czech families that were dealing with dementia. She contacted Iva and both saw the need to offer education, diagnosis, support, and care for people living with dementia and their families in the Czech Republic. Today, both centers are flourishing.

We were impressed with the dementia services they offered, which included home care for people who need help with bathing, dressing, eating, exercise or more. The building holds a respite center. When families need renewal time, or when people living with dementia need extra care or healing time, they can stay in respite for up to a month. The Centre also hosts a day program that offers a variety of activities in a homey and comfortable setting, 

Even more impressive than the Society’s services were its staff. Each had a passion for this work, a love for those who are living with dementia, and a compassion for their families.  

We had a wonderful time sharing a laughing session at the day center—our first international facilitation. We sat in a beautiful circle of people living with dementia, staff, family,  and friends. We couldn’t have done it without our translator, Eliska, who captured the energy and essence of what we were saying. And once we all started laughing, we were beyond the constraints of language. Click here to experience a bit of laughter in Prague.

 

 

 

 

Photo Caption: 

Eliska Brouckova, psychologist, consultant/advisor for people with dementia and their care givers

Martina Matlova, Director

Petr Veleta, PhD, dancer, dance therapist

Marketa Splichalova, psychologist, consultant/advisor for people with dementia and their care givers

Eva Jarolimova, PhD, psychologist, consultant for people with dementia and their care givers

Hana Janeckova, PhD, co- founder of the Czech Alzheimer Society, head of governing board of Czech Alzheimer Society, University teacher, researcher

Lucie Hajkova, social worker, coordinator of respite care in homes of people with dementia.

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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Movies and Memories: Traveling the World Without Leaving Kansas City:

“I’ve traveled the world. Our family moved a lot when we were young,” one of our guests told us, at our August Movies and Memories program. She and her husband bent over our world map and stuck stars on some of the many places they’d lived. Another guest sighed when he looked at the map and saw Vietnam. He had served in the military there. A couple talked about living in Berlin when the Wall came down. 

Our Movies and Memories travel films included forays into Paris, Iceland, Capetown, and Seoul. 

“It was relaxing just watching the scenes from Paris,” said Ah’Lee Robinson, director of the Kansas City Boys and Girls Choirs. He and his singers treated us to an inspiring concert, warming us up for the films. 

“Oh dear, now I want to go to Iceland,” another guest said. 

In between clips, we passed around exotic spices for everyone to smell. At the end of the movies and memories adventure, everyone took home a special “Passport” booklet, created by the library’s Emily Cox, so they could record impressions and memories.  To experience the event, click here.

Here are some passport questions to discuss at home:

Share some travel memories.

What is one of the most beautiful places you’ve ever visited?

What’s the farthest you’ve ever traveled?

What country has the best food?

How many of the US states have you visited?

Thanks to our wonderful volunteers, Sharon and Julie, who brighten our events by bringing treats, making popcorn, and making everyone feel so at home.

Thanks to Craig Eichelman, State Director, AARP, for helping us spread the word about this program.

We are so grateful for the continuing support from the Kansas City Public Library. They are amazing champions for people who are living with dementia and their care partners. They also provide scholarships for hard-working people whose higher education has been interrupted by life circumstances. Their community programs benefit early readers, job seekers, and people who are new to KC. Ron and I use their books and other services every week!

Please join us for our next adventure — Moana. This movie is so inspiring and great for all ages.

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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Celebrating Great Connectors Throughout the Dementia Journey: Music, Nature, and Laughter

When care partners gather and trade stories and ideas, there’s usually magic afoot. We felt that magic when we met with a group of family and professional care partners to celebrate great connectors throughout the dementia journey. We presented engaging ideas using music, nature, laughter and more.

Lisa Vetter, Director of Healthcare Sales & Marketing,  Santa Marta Senior Living Community, invited us to speak at an event announcing the community’s new care partner support group. The group is led by Jennifer Walker, RN, BSN, Clinical Community Liaison, Kansas City Hospice & Palliative Care. Jennifer also facilitates the KC Memory Cafe and she is compassionate, informed, and smart. Most importantly, she has a fantastic sense of humor.

Ron and I shared ways to stay connected through singing and music, looking at works of art together, bringing nature indoors, and laughing. And our audience shared their experiences as well.  

Here’s a story about nature that inspired us.

Marcie took her mom, who was living with dementia, on a fascinating monthly outing: they drove out into the country to look at the full moon. Her mother didn’t talk much anymore, but she loved seeing the night sky and gazing at the magnificent moon. One evening, as the moonlight spread over the car, Mom began singing, When the moon comes over the mountain. Marcie had never heard the song before and her eyes filled with tears at hearing her mom sing so strongly and clearly. 

Here’s a story about the power of familiar music. Karen’s mom was a devout Catholic, living with dementia. Though there were many things she didn’t remember, including her daughter’s name, when she attended Sunday mass, she melodically sang every word of every hymn. 

We loved sharing with this group of dedicated and compassionate care partners, who were all seeking ways to stay connected. 

Here’s an extra tip from Connecting in the Land of Dementia:  When you want to boost energy and lift spirits, add a splash of laughter into your life. Look at a clock and say, “We’re going to laugh for 30 seconds,” and start ha ha ha-ing. Or pretend you’re talking on the phone and hearing a hilarious joke. Or warble out the Ha Ha Chorus by singing the Happy Birthday song in “ha ha ha” syllables. 

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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How Has Television Shaped Our Lives: Insights from Nick Haines, KCPT

How has television shaped our lives? Nick Haines, Executive Producer Public Affairs/News, at KCPT, helped us count the ways at our August Memory Cafe. Fifty people joined us for this witty and illuminating program, including some PBS favorites: Big Bird and the stars of Downton Abbey. Nick began by showing us a few of the 20 most iconic TV clips of our time, including the space landing, Johnny Carson’s farewell show, and the tragedy of 9-11.

Then we moved onto commercials. Does anybody remember when people dressed up to get on an airplane and domestic flights served hot food on real china dishes? How about a young Donald Trump  starring  in a Burger King commercial? The cafe crowed went crazy over  a white-coated MD, starting that he and his colleagues preferred Camel cigarettes. 

Nick had us guess the two most popular non-sports TV events. (Mash and Roots.)  And he set us laughing with tag lines from various products, such as M&M’s, Frosted Flakes, and  Alka Seltzer.   

Nowadays, people watch on so many venues and are often not conversant with the same shows. But during  our cafe, we were all tuned into the enjoyment of sharing laughter, memories, and ideas. Thanks to Nick for his great talk and to KCPT for all the marvelous programming and community work they do.

Click here to experience the Cafe

And thanks to all our teammates and community volunteers.

KCPT is one of the Kansas City Public Library’s many partners in programming. Our library is an amazing champion for people who are living with dementia and their care partners. They also provide scholarships for hard-working people whose higher education has been interrupted by life circumstances. Their programs benefit early readers, job seekers, and people who are new to KC. Ron and I use their books and other services every week!

 

 

 

You don’t need to be artistically inclined to enjoy our next cafe on September 21st. We hope you can join us. 

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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A Stirring Tea Party Brings People Together

It took us an hour to prepare for our festive tea party and we all enjoyed every moment of it. Jennifer Walker, RN, BSN, Clinical Community Liaison, Kansas City Hospice & Palliative Care, knows how to throw a party. She brought pastel table cloths, a charming complement of paisley-printed cups and plates, along with tiered cookie holders.  

For the ladies, she offered colorful fascinators (small hats you can clip into your hair) and bright boas. For the men, she had bow ties and top hats. She also brought the ingredients for tea time sandwiches and a variety of cheeses, veggies and meats. Kathi Michaels and Heidi Underwood from Leawood Gardens, and Lainey Berry, from the Law Office of Love & Blomquist, generously provided an array of baked treats, including legendary cookies from McClain’s Bakery and delectable lemon squares. 

Our guest speaker, Emilie Jackson from Emilie’s French Teas, shared information about the international history, social rituals, and health benefits that come with sipping a cup of tea. After her talk, everyone set to work creating cucumber and cream cheese sandwiches, with the crusts cut off, of course.  We were able to smell several different teas and each person chose a favorite to savor. The food and drink were delicious but even better were the conversations. Each table got into discussions about tea, coffee, life, and more.  One guest enjoyed a tete a tete in French with Emilie, who is originally from France. 

The gathering was so much fun and so engaging, with all the aromas, tastes, and textures, that none of us wanted to leave.  It took us even longer to clean up after the stirring tea party, because we had to help eat the leftovers!

Click on this link for the inside story on our tea party: Memory Cafe, Tea Party

Here are a few of our favorite tea quotes:

Where there’s tea there’s hope. Arthur Wing Pinero

If you are cold, tea will warm you; if you are too heated, it will cool you; If you are depressed, it will cheer you; If you are excited, it will calm you.  William Ewart Gladstone

I like the pause that tea allows. Waris Ahluwalia

A woman is like a tea bag – you can’t tell how strong she is until you put her in hot water. Eleanor Roosevelt

Please join us for our next cafe when the great Nick Haines brings us the inside story on KC local news. We can’t wait!

Our team, ready for tea

Thanks to our sponsors:

The Kanas City Public Library

The Alzheimer’s Association

The Creativity Connection, Deborah Shouse and Ron Zoglin

Kansas City Hospice and Palliative Care

Arts & Aging KC

KC FilmFest

Prairie Elder Care

The Villages of Jackson Creek Memory Care

Dennis and Carol McCurdy, Community Volunteers

 

Please email Deborah at myinfo@pobox.com if you need additional information.

And, we hope you can join us for our next events.

 

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

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