A Thanksgiving Love Story: Bringing Home the Gravy

Thanksgiving changed the year I went vegetarian. I did not mind giving up the tender, moist turkey or the savory oyster-specked stuffing. But giving up the flavorful flow of mushroom-laden gravy was quite another thing. I watched enviously as my family ladled the luscious liquids over their mashed potatoes, turkey and stuffing. As I nibbled dryly on my carrots, green beans and salad, my lower lip protruded. I felt left out and deprived.

My brother, Dan, ever alert to the pouting big sister, came up with a solution.

“Next year I will make special vegetarian gravy just for you,” Dan promised.

Years later, that special vegetarian gravy has become one of my favorite Thanksgiving rituals. I begin fantasizing about it the moment the autumn leaves turn crimson. I know that in mere weeks, my brother and his family will arrive and I will have my yearly boost of family and feasting,

When my brother calls to tell me his travel plans, I write his arrival time and GRAVY on my calendar. The night he comes to town, we make the shopping list together, avidly discussing how many pounds of mushrooms we need for both the carnivore and vegetarian pots of gravy. I relish the early-Wednesday morning trip through the grocery store, where Dan and I and our children carefully select the foods we will be making the next day. We linger in the produce aisle, filling several sacks with gleaming white mushrooms and buying rustling yellow onions.

On Thanksgiving Day, Dan and I and other family members spend long, luxurious hours cooking. Dan mans the stove and I manage the slicing and chopping. Together we snap, peal, slice and dice the vegetables that will accessorize the turkey. I take special pleasure in wiping clean and slicing the mushrooms, then bringing my brother the brimming bowlful. When he has nodded his approval, I get out the old copper pot I bought in Germany in the early seventies. This year, Dan is improving his already amazing gravy. With his new immersion blender, he creates a rich base of caramelized onions, whose flavor surpasses that of the lowly vegetable cube. He adds in a little flour, then gentles the mushrooms into the onion broth. When the pot is bubbling with thickening nectar, he says, “Taste this and see what you think.”

I always think the same thing—“Wow, this is great.”

We are in a state of giddy and satisfied exhaustion by the time our guests arrive. We share grateful prayers with everyone and lay out the feast, including plenty of turkey-based gravy for the rest of the family.

Then comes the moment I have been waiting for: I sit down, my own personal pot of gravy poised by my plate. I cover the mashed potatoes, carrots, green beans, and salad with the aromatic concoction and I savor every bite. But more importantly, I savor the bounty, creativity, and love that have gone into this simple dish. Through this gravy, my brother speaks with his hands and his heart, saying: “I care about you and I am going to make sure you are not left out and that you have something fantastic to eat.”

For that and so much more, I am thankful.

…………

And now, if you’d like to create a Thanksgiving love story, bring home this delicious gravy.

Dan Barnett’s Chicago Style  Never-Enough-Mushroom Vegetarian Gravy

 

 

Ingredients

2 large onions (chopped)

2 pounds (or more) white button mushrooms sliced (can add some portabellas for enhanced flavor)

1 cup of white wine (of lesser quality)

Salt & pepper to taste

Olive oil

Directions

To create the gravy base:

In a four -quart pot, pour a thin layer of olive oil and turn the burner on medium.

Add the onions and sauté for10-15 minutes until they are caramelized (golden brown)

Add water until the pot is about half full.

Simmer slowly for 30 minutes.

Blend the onion water mixture using either an immersion blender or by transferring the mixture to a food processor.

Once you have the gravy base

Add the 2 pounds (or more) of sliced mushrooms, white wine and fill the pot with water until it is 3/4 full.

Simmer for 30 minutes and season to taste with salt and pepper.

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

CITLOD very small

Love in the Land of Dementia_cover

Inside Dementia: Finding Gifts in the Journey

“My husband and I have been married for 53 years,” a woman with delicately curled silver hair and mournful eyes told the group.  “But in the two years since he was diagnosed with dementia, our relationship has changed.” She dabs at her eyes with a tissue and takes a breath. “It has grown even stronger. We are closer than we’ve ever been.”

Ron and I were in a conference room of caregivers in Ft. Wayne, Indiana, presenting for the Greater Indiana Chapter of the Alzheimer’s Association. We had just shared my story, Love in the Land of Dementia, and we were all talking about the gifts we have found in the dementia journey.

Another woman, whose husband was newly diagnosed, talked about her frustration and impatience before the diagnoses.

“Now that I understand what is going on, I have vowed to be more patient. I don’t want to waste a minute of our time together.”

“My husband doesn’t know who I am right now,” another woman said. “But the other day, he gave me such a compliment. He told me, ‘I want to marry you.’”

She told us how she rummaged in her cedar chest and showed her husband their marriage certificate. He read it with interest. Then he looked at her, eyes shining, and repeated, “I want to marry you.” Those words, so filled with love, lifted her spirits immeasurably. “To think that even now, when he doesn’t remember much of our lives together, he still loves me so much, that means a lot to me.”

She smiled, as we all applauded this amazing love.

We heard more stories of amazing love at our earlier presentation in Merrillville, Indiana. When we talked about the gifts and blessings we had each discovered in the dementia journey, one woman told us, “I find it an honor to take care of my mother. She has done so much for me and I am lucky to get to care for her right now. I am glad to be able to show my unconditional love for her.”

People shared many blessings—patience, the increased ability to live in the present, gratitude, flexibility, humor—but a deepening of love was the overarching message. We felt it during our own caregiving journeys, and we felt it deeply in the presence of those caregivers.

 

“The best and most beautiful things in this world cannot be seen or even heard, but must be felt with the heart.”      Helen Keller 

To learn more about the work the Greater Indiana Chapter of the Alzheimer’s Association is doing, please visit : https://www.alz.org/indiana/

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

CITLOD very smallLove in the Land of Dementia_cover

Everyday Heroes and Nine Great Things We Learned This Weekend

This weekend we were lucky to be around a lot of heroes—the staff and grantees of The Brookdale Foundation Group, which supports national Relatives as Parents Programs, along with Group Respite programs.  We loved the sense of commitment and community we felt at this event and we also enjoyed learning from other speakers and the attendees. Here are the nine great things we learned from this weekend’s conference.

I.

Explain

Kent Karosen, President and CEO of the Fisher Center for Alzheimer’s Research, spoke about his new children’s book, Why Can’t Grandma Remember My Name?  Written about the way the brain is impacted by dementia and the affects it has on children, the book is illustrated in brilliantly colorful art, created by children, juxtaposed with art by people who are living with dementia. To learn more, www.alzinfo.org

 

 

 

II.

Reframe

Frances Kakugawa, author of I Am Somebody, spoke of the powerful role poetry played in her caregiving role throughout her mom’s dementia journey. While scrubbing the floor after her mother’s bathroom accident, Frances thought, “There must be another poem here.”  She decided to consider herself a poet-caregiver, rather than a struggling-caregiver. Reframing her image and her language helped her transform her attitude. You’ll enjoy visiting www.franceskakugawa.wordpress.com  and learning more about Frances, her writing, and her many books.

 

 

III.

Play

Who knew you could have so much fun with poetry! Gary Glazner, for one, founder of the  Alzheimer’s Poetry Project, who lead the whole group in a rousing call and response version of several popular poems. Gary added in music, movements, and stoked up our enthusiasm and our energy. We also created a poem together. You’ll enjoy using his ideas to deepen your communications and your connections. Visit www.alzpoetry.com and treat yourself to his book, Dementia Arts: Celebrating Creativity in Elder Care.

 

 

IV.

Support

We were shocked and saddened to learn there are more than one million caregiving youth in our country, struggling to stay in school and keep afloat while taking care of ailing family members. Connie Siskowski’s organization, American Association of Caregiving Youth, provides support for these gallant middle schoolers and teens. To learn more about her program, visit www.aacy.org

 

 

 

 

V.

Care

How many of us take enough time to truly care for and nurture ourselves. Jane Barton, speaker, write, and listener, spoke eloquently of compassion fatigue, born of too much caring for others and not enough focus on self. We laughed, cried, and reminded ourselves of the importance of self-care. Learn more from her at www.cardinalife.com and see her book, Caregiving for the GENIUS: Understand the Journey from the Inside Out.

 

 

 

There were more amazing speakers, but we didn’t get to hear them because we were speaking all day Saturday, sharing two information-packed sessions of Connecting in the Land of Dementia and one session of  our beloved The Hero Project. But just because we were teaching doesn’t mean we weren’t learning. Here are just a few of the tips we gathered from our participants.

 

VI.

Give

As a way of adding meaning and purpose to life,  one memory care day group created dog biscuits to donate to their local animal shelter. They stirred up a healthy mixture of organic ingredients, used cookie cutters, and delighted a lot of lonely pooches.

VII.

Collage

Another day care center helped a non-verbal resident create her own collage. One caring person watched carefully as this elder looked through a magazine, pausing at pictures of interest. Then the caregiver tore the photos that had intrigued the woman. Together, they glued them into a collage that the woman enjoys looking at often.

VIII.

Sing

“Song titles inspire singing and conversation,” one participant told us. She shouts out familiar titles and someone in her memory care group usually sings the next couple of verses, with others joining in. This often sparks a conversation about the song.

IX.

Share

The sense of community and generosity during the weekend reminded us again of why we love doing this work and of the importance of sharing things that work, things that don’t, and asking about things we wish we knew. Often, someone else has an answer for us, usually one of those quiet, but powerful, everyday heroes.

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

CITLOD very smallLove in the Land of Dementia_cover

Chocolate Boosts Brain Health!

As the daughter of someone who lived with dementia, I do a lot of things to boost my brain health. I try to walk 10,000 steps a day, along with other exercise. I eat blueberries and broccoli. I do squats, try to memorize a few words of Spanish, and think about taking harmonica lessons. I try new things, laugh often, and practice drawing. But a recent study revealed that I was intuitively doing something else that was cheering on my brain, something I hadn’t even counted. Just in time for Halloween, it turns out Chocolate Boosts Brain Health!

I recently encountered a fascinating study on the Harvard Health website, and was intrigued when I read this headline: Cocoa: a sweet treat for the brain

 

Imagine being in Italy and contributing to scientific research by drinking a luscious dark cocoa drink every day for eight weeks. Then imagine feeling even more lucid, vibrant, and healthy after that experience. That is the essence of the Cocoa, Cognition, and Aging (CoCoA) Study, published in the American Journal of Clinical Nutrition in December 2014, with this flavorful title: Cocoa flavanol consumption improves cognitive function, blood pressure control, and metabolic profile in elderly subjects. (Note: It turns out some of the “elderly” subjects are as young as 61, an age some of us may argue is merely “middle-age.”)

A Chocolate Boost Makes Your Brain Boast

I am also in love with this Maine-Syracuse Longitudinal Study (MSLS), of 968 people that includes these mouth-watering assertions:

All cognitive scores were significantly higher in those who consumed chocolate at least once per week, than in those who never/rarely consumed chocolate.

“More frequent chocolate consumption was significantly associated with better performance on the Global Composite score, Visual-Spatial Memory and Organization, Working Memory, Scanning and Tracking, Abstract Reasoning, and the Mini-Mental State Examination,” said the research team, which included scientists from the University of Maine.

More Delicious Cocoa-flavored News

And another study from Loma Linda University, states:

“Dark chocolate, which is 70 percent cacao, is a major source of flavonoids –- powerful antioxidant and anti-inflammatory components that are known to be beneficial to cardiovascular health. The California team’s initial studies at Loma Linda University have shown that absorbed cacao flavonoids penetrate and accumulate in regions of the brain associated with learning and memory.”

“We are tremendously excited about what these findings could potentially mean for brain health,” said Lee Berk, DrPH, MPH, who led the team. “This may open the door for potential restorative uses for individuals with memory/recall or dementia and aging-related issues.”

Never Forget To Boost Your Brain

I now have a remedy for those days when I’m too tired to exercise, too busy for a crossword, too cranky for a brain game. Or for when I simply forget. On those days, I’ll simply treat myself to a taste of the dark side. And hope it leads me towards the light.

Want to learn more?

http://www.goodnewsnetwork.org/study-confirms-brain-and-memory-benefits-from-dark-chocolate/

http://www.sciencedirect.com

http://www.health.harvard.edu/blog/cocoa

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

CITLOD very smallLove in the Land of Dementia_cover

Insider Dementia Friendly Travel Tips, from Laurie Scherrer

This year, Laurie Scherrer is taking a number of trips: Atlanta, to speak at a conference, South Carolina, for a family reunion, and the Caribbean, as a speaker and participant in a dementia-friendly cruise. Since she is living with early onset dementia, Laurie plans out her trips, taking into consideration her needs and the chaos that can be a natural part of any journey. Here are some insider dementia friendly travel tips from Laurie.

 

Planning for a Smooth Flight

Laurie contacts TSA and her airline, notifying them of her disability, so they can mark it on her ticket. She and her husband both paid for a TSA pass, so they can go in together. That helps her avoid the bombarding noise, distraction, and exhausting wait inherent in a long check-in line

“The TSA staff will walk you through the line,” she says.

Laurie is sensitive to noises, so the constant airport announcements, the din of hundreds of conversations, and the drone of background sounds present challenges.

“I walk into a restaurant and I hear the clanging of the dishes, the forks on the plates, the waiter’s shoes thudding against the floor,” she says. “I have lost my ability to filter sound, and those noises are as strong as any conversation I’m having.”

To minimize distraction and confusion and to help her concentrate, Laurie often wears noise-cancelling headsets.

Once in the airport, she tries to find a quiet place to sit.

“I don’t sit at the gate for two hours with a slew of people,” she says. “Sometimes a restaurant or bar is quiet. For overseas trips, you can try to get access to an airport lounge.”

She tries to get a seat towards the front of the plane, to avoid additional waiting and wading through a crush of passengers.

 

Packing it Up

Two weeks before a trip, Laurie organizes her clothes for each day. She puts on an outfit, then takes a picture of it.

“On the picture I write, ‘Purple shirt, black slacks, white sneakers, white socks, etc.,’” she says. “Then when I pack, I put each day’s entire outfit together, including socks and underwear. That makes getting dressed so much easier.”

 

Getting Oriented

At any new hotel, Laurie and her husband walk around the entire building so Laurie can get oriented. When she is traveling alone, she talks to the hotel manager, to explain her situation. At one lodge, the receptionist escorted Laurie to her room and helped her unpack. Laurie carries a tag with her name and room number on it, in case of sudden confusion.

“Don’t be afraid to ask for help,” she says.

 

Taking Breaks

Laurie has already planned her quiet time and her personal getaways for the upcoming cruise, where she is both a traveler and a speaker/educator.

“On cruise ships, the library is often a quiet haven,” she says.

She also avoids group shore excursions, as it is hard for her to enjoy being in a crowd.

But it’s not hard for Laurie to relish travel and to revel in engaging in new experiences and meeting new people. It just takes a little planning and a lot of taking care of herself.   #

To learn more about Laurie, visit https://dementiadaze.com/about-me/

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

CITLOD very smallLove in the Land of Dementia_cover

Widening the World Through Travel

As the waiter served dessert, Lori La Bey looked around the table at her family and smiled. She couldn’t believe she had pulled this off — her children, her siblings and their children, and her parents all enjoying a Caribbean cruise together.  Her mother was living with Alzheimer’s and her father had brain cancer: they had assumed they wouldn’t get to travel again. They were beaming and Lori knew all her planning had been worth it. She was widening the world through travel.

She still treasures the family pictures from this trip. This meaningful travel experience inspired Lori, founder and host of  Alzheimer’s Speaks, to orchestrate a cruise for people who are living with dementia and their families.

“Travel is a normal part of life,” Lori says. “When you stop traveling, your world becomes smaller.”

From her years caring for her mom, Lori understands how easy it is to feel isolated and stuck. She also understands the joy of engaging in the world, trying new things, and meeting new people. Her trip enriched her family and she wants to offer others that gift of connection and adventure.

Lori also learned some tips from traveling with her parents. Here are a few ideas for creating a smooth traveling experience for yourself and for someone who is living with dementia:

Create a flexible travel experience. Lori chose cruising because it can be reasonably priced, you can unpack once and stay in the same room the entire trip, and there’s lots of flexibility with eating (including free room service), activities, and touring. Cruising is also ideal for the intergenerational experience, offering activities for all ages.

Make the person living with dementia part of planning the trip. Discuss the trip with all involved, asking for feedback and talking about what each person really wants to do. Incorporate those dreams into the trip.

Empower your travelers. Lori packed all her parents things into one giant suitcase. Her father had always been the one managing the luggage and he really wanted something to carry. “I hadn’t thought to pack a couple of small bags so he and my mom could feel like regular travelers,” Lori says. “People want something to be in charge of so they don’t feel left out.”

Work with a travel agent and make your life easier. Plan in advance for noise, long transfers, layovers, long car rides, and other chaos. If flying, call the airport if you need to arrange for wheelchairs or other inner airport transportation. To mute noises, bring earplugs. Carry along items that soothe and comfort each of us, including favorite music and head phones. If you’re cruising, talk to the cruise lines in advance, discussing special needs, including dietary, medical, and any mobility issues.

Take pictures and videos and document these precious moments. You’ll enjoy looking through these memories again and again together.

“Travel is about being together and widening your world,” Lori says.  “It’s a wonderful way to build those moments of magical and meaningful connection.”

For an amazing way to widen your world, consider Lori’s upcoming November Dementia Friendly Conference and Cruise. Lori and a team of educators, including a panel of inspiring people who are living with dementia, have planned a nurturing, connecting, educational, and inspiring Caribbean trip. For more information, visit, https://alzheimersspeaks.com/cruise-with-us

 

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

CITLOD very small

 

 

 

 

 

Finding Meaningful Memory Care

“I feel like I’ve been on extended vacation,” Ron’s father Frank said, after his first day in a memory care facility. “Today was really enjoyable.” Ron and I just melted with happiness. We had visited many facilities, with the hope of finding meaningful memory care with great activities. Frank couldn’t have said anything nicer.

It’s quite an emotional journey, finding meaningful memory care. So many of you have asked me for tips. I am re-posting the great ideas from my friend, Dr. El, Dr. Eleanor Feldman Barbera, PhD, author of The Savvy Resident’s Guide and a columnist for McKnight’s Long Term Care News.

Finding Meaningful Memory Care With Engaging Activities

“Remember, everything is an activity,” says Dr. El. She encourages care partners to seek a community with a dedicated memory care program, so people with cognitive impairments can benefit from all the offered activities.

“In a specialized unit, staff are trained to work with people who are living with dementia,” Dr. El says. “This training can help people enjoy greater independence.”

In one facility, a lady liked to wander into people’s rooms and take their jewelry. Rather than getting upset, the staff understood, framed this as “shopping,” and simply returned the jewelry.

“These kinds of insights create a calmer, slower-paced environment that reduces agitation,” says Dr. El.

Seek Structure, Soothing and Variety

Here are some things to look for, as you visit facilities:

Is there a home-like atmosphere?

Is there a structure to the day?

Are there calming activities scheduled for change of shift? Changing shift is disruptive, so some communities orchestrate a teatime with music or other soothing activities.

You’re also making sure there are a variety of activities throughout the day. These should include:

Outdoor Time: Taking people outside makes a big difference in mood, appetite, and the sense of connection to the world.

Movement: Exercise is an important component to health.

Nurturing: Look for activities that make people feel confident and good about themselves, such as spa days or activities that incorporate skills such as cooking, art, or gardening, modified to provide a “success” experience.

Engagement: Being engaged, rather than just entertained, inspires a sense of purpose, creativity, and social connection.

Kindness is Everything

“Meet with the recreational therapist,” Dr. El suggests. “Is she compassionate and caring? Are the staff members kind? You can have all the activities in the world but if they’re not done with gentleness and humanity, they won’t work.”

Let the recreation director know what your loved one likes to do and see if she can adapt the activity.

Stay Involved

Visit as often as you can and attend activities together. Encourage friends and relatives to join you. Meet other residents and get to know the families and staff.

“You can act as a connector to create friendships, so residents engage in their own interaction, even when you aren’t there,” Dr. El says.

For more information, visit Dr. Eleanor Feldman Barbera, PhD, http://www.eldercarewithdrel.com,

Treat yourself to Dr. El’s book, The Savvy Resident’s Guide

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

CITLOD very small

 

 

How to Create Better Connections in the Land of Dementia

Ron and I both love helping people create better connections in the land of dementia.  We are enjoying the second year of our meaningful Movies and Memories film series.  Our next free movie events (and I say “events’ because there is so much more than just sitting and watching a film) are September 10 and November 5.  Please tune into Kansas City Live on KSHB-TV on Thursday, September 7 during the 10:00 hour, for additional details. 

I was delighted to be featured on Mike Good’s Together in This recent podcast. Mike is a gifted interviewer, with an authentic voice and a true commitment to help people stay better connected. I so enjoyed our time together and wanted to share the interview with you.

Recently, we have been connecting through creating laughing classes for caregivers, elders, people who are living with dementia, and others. We love going around to care communities and laughing with community members, family, and staff. Our next public laughter presentation is at the Landon Center, on October 18 at noon. It’s free and open to the public. If you’re in the Kansas City area, please come laugh with us. It’s great fun!

A quick laughing exercise

I was honored to have a book excerpt featured on Maria Shriver’s website.  Maria does amazing work and her new book, Color Your Mind, is a visual and information treat, full of inspiring ideas.

I was thrilled when a story of mine was accepted by Chicken Soup’s The Dog Really Did That? The story honors Ron’s mom, Mollie, and her love for a dog named Biscuit. If you have a chance, read my story and so many other great essays in this inspiring book.

Finally, thanks to Mary Anne Clagett of Creative Forecasting, a publication for Activities Professionals. She is featuring a review of Connecting in the Land in their November issue. The publication brims with interesting ideas for creative and meaningful activities.

There are so many ways to Create Better Connections in the Land of Dementia, and as you can see, there is power in sharing stories, laughter, and the arts. 

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

CITLOD very small

 

 

 

 

Let’s Go to the Movies: A Dementia-Friendly Series

“Let’s go to the movies,” my dad often said to my mom. My parents would have loved our Movies and Memories series, now starting its second year.  We are excited to announce our partnership with the Kansas City Boys Choir and the Kansas City Girls Choir this season. Some of their outstanding performers will be joining us at each event.

Already, the series is making a difference in a variety of ways. Additional libraries in Missouri and other states are interested in implementing the program. And our library is so committed to becoming more dementia-friendly that it is having special training for its staff, courtesy of the Alzheimer’s Association — Heart of America Chapter. Please share this invitation with those who would enjoy it. And if you’re in the Kansas City area, please join us. It’s free and open to all. Let’s go to this movie series!

Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

CITLOD very small

 

 

“Stamp” out Alzheimer’s

Do your part to “Stamp our Alzheimer’s.” For twelve years Lynda Everman was a silent caregiver. Her husband, Richard, was diagnosed with Mild Cognitive Impairment in 1997; in an effort to preserve his dignity, she told few people what they were going through.“We were both introverts and private people,” Lynda says. “My husband and I were a team, taking care of each other, moving through a situation that was too painful to address in public.”
After she had to move her beloved husband into assisted living in 2009, she went on her first advocacy trip to her state capital, Nashville, where she began telling their story. She continues to be an ardent voice for all families impacted by Alzheimer’s and other dementias. Along with activist Kathy Siggins, Lynda campaigns for a semipostal stamp that could raise money for Alzheimer’s Disease research.
The proposed stamp is similar to the Breast Cancer semipostal: consumers pay a little extra for the stamp and the additional funds go to the NIH for medical research. As of May 2017, the US Postal Service has raised over $84.4 million dollars for breast cancer through sales of that stamp. Lynda and Kathy want the same opportunity for Alzheimer’s research.
 Lynda is determined to change the trajectory of Alzheimer’s disease through public policy, increased funding for biomedical research, and recruitment of volunteers for clinical trials. The Alzheimer’s Disease Research Semipostal Stamp is central to Lynda’s campaign for its potential to advance research and public awareness of Alzheimer’s. She has written to every member of Congress urging them to cosponsor the Semipostal and she and Kathy have made countless visits to members.

Here’s where you come in.

H.R. 2973: To provide for the issuance of an Alzheimer’s Disease Research Semipostal Stamp was introduced earlier this year by Reps. Maxine Waters and Chris Smith, Co-chairs of the Bipartisan Congressional Task Force on Alzheimer’s Disease and currently has 76 cosponsors. Lynda and Kathy hope to recruit at least 100 cosponsors so they may request a public Congressional hearing on the merits of the proposed legislation.The stamp  is bipartisan and noncontroversial; it requires no governmental funding or increase in taxes.
You can help RIGHT NOW by calling your congresspersons and asking them to cosponsor H.R. 2973.
“It is important to share your story and speak out for those who cannot,” Lynda says. “ Please help them and their caregivers—and help us make this fundraising stamp a reality.”
##
To call the U.S. Capitol Switchboard, dial 202-224-3121 and ask to be put through to the office of your Representative in the House.
If you don’t know the name of your Representative, you can get that information, as well as the direct line to his/her office, by visiting: http://www.contactingthecongress.org.
For more about Lynda’s work, please visit:
In addition to founding ClergyAgainstAlzheimer’s, Lynda served as a editor for “Seasons of Caring: Meditations for Alzheimer’s and Dementia Caregivers” and their recently released Leaders Guide for support groups. http://www.usagainstalzheimers.org/networks/clergy/seasons-caring She has a blog post on UsA2: http://www.usagainstalzheimers.org/blog/its-time-alzheimers-stamp
 Lynda is a tireless advocate on many fronts. On her advocacy site, Help Stamp OUT Alzheimer’s, she shares research and legislative updates, caregiving tips, the work of fellow advocates, and words of encouragement. She is a founding member of three national networks, all under the umbrella of USAgainstAlzheimer’s: ActivistsAgainstAlzheimer’s, ClergyAgainstAlzheimer’s, and WomenAgainstAlzheimer’s; and was instrumental in launching the Faith United Against Alzheimer’s Coalition (FUAAC), a cooperative effort to mobilize all elements of the faith community in the fight against Alzheimer’s disease and related dementias.
Deborah Shouse is the author of Connecting in the Land of Dementia: Creative Activities to Explore Together and Love in the Land of Dementia: Finding Hope in the Caregiver’s Journey.

CITLOD very small